It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-07-2012, 03:50 PM   #1
Member
(male)
 
Join Date: Aug 2008
Location: North Carolina
Posts: 78
brclrk80 HB User
Confused on what I should do.

I have been diagnosed with MS since 2008. I originally started on Rebif, which I took for about 1.5 years. I never once had any side effects from Rebif until the end when I started to develop major depression, which is why I stopped. I then switched to Copaxone which I took up until a couple weeks ago. I stopped the Copaxone because it would cause painful welts that would last for days, also it caused permanent indentations in my skin.

Last week I started back on Rebif, but this time it is different. I took the first shot at 10 PM along with 2x 500mg Tylenol. I woke up at noon the next day, 14 hours later, with a high fever, body aches, headache, fatigue, chills, etc. Two days later I took another shot, again, the same thing. I spoke to a nurse and she said I should sleep though the symptoms which should only last 6-8 hours. Why are mine lasting well over 14 hours? This is on the lowest dosage too. I am scared to take another shot or to go to a higher dose. I can't handle not being able to function until 5-6 PM from a shot I took the night before. Should I go back on Copaxone? I really hate it.

I have tried Avonex but had a terrible allergic reaction, even though it's the same medicine as Rebif? I am too scared to try Tysabri as I have heard bad things about it and hate IVs. What alternative do I have?

Last edited by Administrator; 08-07-2012 at 04:48 PM.

 
Old 08-07-2012, 04:14 PM   #2
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,455
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Confused on what I should do.

There are not many meds available. Have you discussed your situation with your prescribing doctor? There are some older threads herein which you can read through regarding available meds.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Sponsors Lightbulb
   
Old 08-07-2012, 04:37 PM   #3
Member
(male)
 
Join Date: Aug 2008
Location: North Carolina
Posts: 78
brclrk80 HB User
Re: Confused on what I should do.

I have talked with him about it, and he is willing to let me try pretty much anything. He has been pushing me to try Gilenya, but none of his patients are willing to take it since it is so new and not much is known about it. It may be something to consider, however I have read some disturbing things about it. I understand that no medicine is side-effect free and there are risks to all of them. I think I am going to take some time off, do some research and figure out what is best for me. I may even try the pill, who knows.

 
Old 08-07-2012, 05:03 PM   #4
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,455
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Confused on what I should do.

Gilenya has had many problems. Have you thought about LDN? It is cheap and off label used for some MSers.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



MSJayhawk (1000), MSNik (526), Snoopy61 (58), J-one (13), Whimpurr (13), shahila (12), JodiH (11), MS22 (11), KingBaxter (10), LasVegasgirl (8)

Site Wide Totals

teteri66 (1180), MSJayhawk (1006), Apollo123 (906), Titchou (851), janewhite1 (823), Gabriel (759), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 02:54 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!