New symptom? Scared and no one to talk to.
I would normally bring this to the people in my life but they have a lot going on right now. Sister has a 5 day old baby, Mom is worring about her, best friends son is having major cranio-facial surgery and husband, well he just worries.
So I haven't had my Tysabri infusion since July 1. I had a cold and then developed a cold sore on my lip. I have been waiting for it all to go away to schedule my next infusion. This morning I noticed that when I smiled at my kids, even after the smile the nerve was still "tugging" my lip. I would get hte same sensation even if I didn't smile. I haven't had anything new or different develope since early 2009. I'm kinda freaked out. As I type this I am feeling a twitch in my upper lip, different from what I felt earlier.
Its freaks me out cause on of the things that got my diagnosed was facial paralysis on the same side. I just can't bring my fears to my family because I don't want to worry them.
DO you think I should contact my Neuro about this or mention it at appointment in November?
Last edited by Reeny706; 08-26-2012 at 06:19 PM.
Reason: ETA a question