Re: what test to do b4 seeing dr.
Hi again. Unfortunately, the tests that you will need, have to be ordered by the doctor you are seeing. Especially with an MS specialist, if they didnt order them, or they werent done where they request them to be done, they are going to reorder them. Thats just the way these guys operate. The MS center at RWJ has everything you could possibly need or want as far as MS tests go; however, they have to be ordered by a neurologist who participates.
The tests you can anticipate are newer MRIs, if his are more than 6 months old...possibly a spinal tap- this is done to see if Obands are present and also to rule out other diseases which mimic MS- they will probably do a host of bloodwork, but again, if it is more than a month old, theyll repeat it.....looking for vitamin deficiencies and for lows and highs of different levels. They will probably want to do some nerve conduction studies, if he is showing any signs of weakness in any of his extremeties....arms/hands/legs/ feet.
There isnt much you CAN do until you see his doctor unfortunately. I was a patient of another doctor, who actually worked with this group years ago, who ordered all my MRIs and LP (spinal tap)- when I got into see Dr B and Dr Jalbut, they reordered everything. The same results appeared, but they wanted them done by, and read by, their own team.
Sorry that probably isnt what you want to hear......but thats the way most MS specialists work. If you happen to have the old MRI films and reports, if you have any blood work results or any labs, bring them with you....but be prepared to have them repeated.
When is the appointment? Please keep us updated!
RRMS- dx 05