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fromptok 09-05-2012 06:23 AM

ovoid plaques
 
MRI showed ovoid plaques in/on left and right frontal lobes. MRA was good. Bloodwork good. EEG good. Spinal tap showed nothing. My neuro said she thinks ALL my "symtoms" are due to my fibromyalgia and that I was just going to have to learn to live with it...including my unexplained "dizzy" spells that I've been having for the past 7 yrs...which started before I even took any type of meds! So, what could be the cause of these plaques? I don't think you can get them from fibro, can you? I think she was just blowing me off because I have no insurance! Someone plz help.

fromptok 09-05-2012 06:27 AM

Re: ovoid plaques
 
My dr back in '05, thought MS due to all my symptoms so she ordered MRI and it showed up nothing then and now 7 yrs later, showing these ovoid plaques.

MS22 09-05-2012 06:39 AM

Re: ovoid plaques
 
What does the IMPRESSION portion of the MRI say? The radiologist generally reads it and gives an impression...for instance consistent with demylenating disease, small vessel disease, nonspecific, MS, etc.

This will give you a better idea of what they are thinking.

MS22 09-05-2012 06:41 AM

Re: ovoid plaques
 
What does the IMPRESSION portion of the MRI say? The radiologist generally reads it and gives an impression...for instance consistent with demylinating disease, small vessel disease, nonspecific, MS, etc.

This will give you a better idea of what they are thinking.

MSJayhawk 09-05-2012 06:49 AM

Re: ovoid plaques
 
:wave: Welcome.

Back in 2005, depending on the time set, there may not have been anything to see on your MRI. As MRI's can change, given the fact that 7 years has passed, there can be changes. Was your most recent MRI ordered and read by an MS Specialist? Did you start any meds in 2005? :angel:

fromptok 09-05-2012 06:51 AM

Re: ovoid plaques
 
It says no acute findings and minimal demyelination process as above. No abnormal enhancement. Correlate with clinical findings.

fromptok 09-05-2012 07:01 AM

Re: ovoid plaques
 
[QUOTE=MSJayhawk;5050768]:wave: Welcome.

Back in 2005, depending on the time set, there may not have been anything to see on your MRI. As MRI's can change, given the fact that 7 years has passed, there can be changes. Was your most recent MRI ordered and read by an MS Specialist? Did you start any meds in 2005? :angel:[/QUOTE]

No, my reg dr ordered this due to all my symptoms, once again, thinking it may be MS. And both MRI's were read by the hospital's interpreting physician. My first symptoms was the dizziness which started in June '05 and then in Sep '05 I started developing sooo many signs that said MS so, I went to dr in Oct '05 and she put me on Celebrex for pain, Valium for panic/anxieties, and Metformin because bloodwork showed I had diabetes. Then in Jan '06, after exhausted efforts of trying to find out what was wrong with me, she sent me to a rheuma and he dx me with fibromyalgia and put me on Neurontin and Trazadone. Then my dr put me on Paxil after that also. So no, I was taking no meds whatsoever when my symptoms started...and thought I was a very healthy person until all the symptoms just hit me!

MSJayhawk 09-05-2012 07:25 AM

Re: ovoid plaques
 
Who diagnosed panic/anxieties? As to meds, Neurontin long term can cause side effects, but you cannot stop it cold turkey- you have to be weaned off of it. :angel:

MS22 09-05-2012 07:45 AM

Re: ovoid plaques
 
[QUOTE=fromptok;5050769]It says no acute findings and minimal demyelination process as above. No abnormal enhancement. Correlate with clinical findings.[/QUOTE]

You might want to contact the National MS Society and ask them for a list of MS specialists in your area. It would not hurt to have an MS doc look at the films themselves.

Radiologists read the MRIs, and are good at it, but when they say "suggest clinical correlation", you really need to have an MS doc look at it.

It may be that given the location of your lesions and suspected diabetes, they have decided they are due to diabetes (I don't know the size of the lesions), however, MS lesions and other demyelinating diseases are mostly ovoid or Dawson finger-like in shape.

fromptok 09-05-2012 01:45 PM

Re: ovoid plaques
 
[QUOTE=MSJayhawk;5050787]Who diagnosed panic/anxieties? As to meds, Neurontin long term can cause side effects, but you cannot stop it cold turkey- you have to be weaned off of it. :angel:[/QUOTE]
My dr said I have panic/anxieties, due to some childhood issues I told her about and I also went to a pschologist and she did too, also borderline PTSD and something else(?) so now I am on Cymbalta for that. I have Agoraphobia and have become a "hermit". I do not like going anywhere unless necessary. And I also have extreme memory loss....from a week or two ago clear back to birth...I don't hardly remember anything just flashbacks. Also, I have quit Neurontin a couple times cold turkey, with no side effects...thinking I'm just tired of taking meds, but found out real fast that it was helping with pain.

fromptok 09-05-2012 01:56 PM

Re: ovoid plaques
 
[QUOTE=MS22;5050798]You might want to contact the National MS Society and ask them for a list of MS specialists in your area. It would not hurt to have an MS doc look at the films themselves.

Radiologists read the MRIs, and are good at it, but when they say "suggest clinical correlation", you really need to have an MS doc look at it.

It may be that given the location of your lesions and suspected diabetes, they have decided they are due to diabetes (I don't know the size of the lesions), however, MS lesions and other demyelinating diseases are mostly ovoid or Dawson finger-like in shape.[/QUOTE]Thank you, I will do that. The radiologist did not know I had diabetes. And my dr sent me to see the neuro because of this, requesting a spinal tap. This neuro did not even look at the MRI report or the MRI disc I took to her. She just asked me a few questions and wanted to put me on a seizure and migraine meds. I even told her the EEG showed, because she wouldn't look at the reports, no seizures and that I did not have migraines and she said well just try these meds and see if they help! On the report, it doesn't state the size of the lesions.

MSJayhawk 09-05-2012 03:08 PM

Re: ovoid plaques
 
Panic and anxiety are stand alone problems which can manifest as MS like symptoms, but panic and anxiety would not cause the ovoid plaque. Panic and anxiety can also be found with MSers too.

You were lucky that the cold turkey stoppage of Neurontin did not cause an adverse reaction. If you have a neurologist read your MRI, they might have a differing opinion with your images. A rheumatologist also would have a differing interpretation if fibro was the case for you.

As to uninsured medical care, I would contact your state agency which works with people in your situation to find out what is available in Kentucky. Many state teaching hospitals have programs set up for people who lack insurance.

Though you are tired of meds, there are meds which can restore a sense of normalcy depending on your disease or disorder. I hope this is your case so that you can get back to your life. :angel:

:angel:

fromptok 09-05-2012 03:43 PM

Re: ovoid plaques
 
[QUOTE=MSJayhawk;5050986]Panic and anxiety are stand alone problems which can manifest as MS like symptoms, but panic and anxiety would not cause the ovoid plaque. Panic and anxiety can also be found with MSers too.

You were lucky that the cold turkey stoppage of Neurontin did not cause an adverse reaction. If you have a neurologist read your MRI, they might have a differing opinion with your images. A rheumatologist also would have a differing interpretation if fibro was the case for you.

As to uninsured medical care, I would contact your state agency which works with people in your situation to find out what is available in Kentucky. Many state teaching hospitals have programs set up for people who lack insurance.

Though you are tired of meds, there are meds which can restore a sense of normalcy depending on your disease or disorder. I hope this is your case so that you can get back to your life. :angel:

:angel:[/QUOTE]
Well, this panic/anxiety didn't start until I developed all my other symptoms...it's like they all hit me one right after another within a 3 month period, that being the last to set in after every thing else. My neuro wouldn't even read the reports or look at the disc when I went to her and I can not afford to go back or go to a new one...I already had to pay a big 1st visit pymnt and also have more charges for 2nd visit just to hear her say, since there were no findings with the spinal tap that she felt everything that I'm experiencing is due to my fibro! And I don't qualify for state help...they say I'm able to work! Is there other diseases that show ovoid plaques?

MSJayhawk 09-05-2012 04:09 PM

Re: ovoid plaques
 
I am afraid that your neuro does not sound like an MS Specialist as she went right from the MRI to the spinal tap to make a decision. Based upon the fact that approx. 83% of MSers have ovoid lesions, I would think that this pushed you towards having an MS Specialist look at you.

Some other disease which can present with ovoids (many start with ovoid and change as the disease progresses: Progressive Multifocal Leukoencephalopathy, Post-Infectious Encephalitis, Alexander's disease, Canavan disease, Cockayne's syndrome, and Pelizaeus-Merzbacher's disease;.......

While you could have fibro and MS, I would doubt the veracity of fibro alone in your case- (my non-medical opinion). You might also check the fibro board on this website as you might find people who share similar symptoms as you. :angel:


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