It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 09-12-2012, 10:58 AM   #1
Junior Member
(female)
 
Join Date: Sep 2012
Location: Sudbury, Ontario, Canada
Posts: 12
Miched HB User
Talking Possible MS???

So many MS Symptoms, burning legs arms, tingling, crawling sensation, when I lay down I cannot have anything on my legs it hurts too much. Blurry vision, tired, not sleeping. UGGGHHHHHH!!! 3 years now have been to family DOC and NEURO, Neuro said I have Fibro.... it isnt that... back to DOC's month after month and month.... The pain is like a nightmare that comes back every night!!!! So many meds and nothing helps... Lyrica, Cymbalta, T1, T2, T3, Percocets, Hydromorphone... these do not work, I have to take too many and I am soooo tired of taking meds..... EMG Results say I have no reflexes in my left foot, my MRI shows I have 2 brain lessions.... Do I or Don't I have MS... Back to the Neuro in a month. The Doc has now put me on Gabapantin seems to help a little takes the edge off, I am at least able to sleep a bit. Why do I have bain lessions.... what exatly does it mean, does anybody know? I have had 3 separate episodes lasting longer that 24 hours where I could not walk, sore legs, joints, very tired, walked like I was 100 hanging on to the side of counters and couches to support myself... I have also fallen down and lost all feeling in my left leg... very weird sensation my leg was all rubbery. The feeling came back almost right away. All posts would be much appreciated.

 
Reply With Quote
Old 09-12-2012, 12:04 PM   #2
Inactive
(female)
 
Join Date: Apr 2010
Posts: 103
MS22 HB UserMS22 HB UserMS22 HB UserMS22 HB User
Re: Possible MS???

Quote:
Originally Posted by Miched View Post
So many MS Symptoms, burning legs arms, tingling, crawling sensation, when I lay down I cannot have anything on my legs it hurts too much. Blurry vision, tired, not sleeping. UGGGHHHHHH!!! 3 years now have been to family DOC and NEURO, Neuro said I have Fibro.... it isnt that... back to DOC's month after month and month.... The pain is like a nightmare that comes back every night!!!! So many meds and nothing helps... Lyrica, Cymbalta, T1, T2, T3, Percocets, Hydromorphone... these do not work, I have to take too many and I am soooo tired of taking meds..... EMG Results say I have no reflexes in my left foot, my MRI shows I have 2 brain lessions.... Do I or Don't I have MS... Back to the Neuro in a month. The Doc has now put me on Gabapantin seems to help a little takes the edge off, I am at least able to sleep a bit. Why do I have bain lessions.... what exatly does it mean, does anybody know? I have had 3 separate episodes lasting longer that 24 hours where I could not walk, sore legs, joints, very tired, walked like I was 100 hanging on to the side of counters and couches to support myself... I have also fallen down and lost all feeling in my left leg... very weird sensation my leg was all rubbery. The feeling came back almost right away. All posts would be much appreciated.
Do you know where your lesions are in your brain (location)?

In the IMPRESSION portion of the MRI report, did it say that the lesions were consistent with demyelination or multiple sclerosis? MS lesions have a specific look and specific locations they like to settle in.

Numbness in MS tends to last in an exacerbation >24 hours, in fact it has to last >24-48 hours to be considered an exacerbation.

Your trouble with walking, is it related to weakness or stiffness, or pain?

If pain, that may be why you were diagnosed with fibromyalgia which can come with fatigue.

Brain lesions can come from a number of things. What are the differentials that are listed on the IMPRESSION on your MRI, that will give you an idea about what they are thinking.

I hope you feel better soon...no fun being in pain.

You might want to ask for some Baclofen or Flexeril for the muscle spasms.

 
Reply With Quote
Sponsors Lightbulb
   
Old 09-12-2012, 12:32 PM   #3
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,486
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Possible MS???

Welcome.

Nerve pain can be difficult and too often impossible to treat. My only remedy has been my heating pad for things below my neck. If you have fibro, things like low pressure weather systems can impact you.

Brain lesions can be caused by viral infections, high fever, and other problems. The Revised McDonald Criteria looks at lesions over time and to see if there are active lesions (among other criteria). If MS is considered a possibility in your case, I would encourage you to see an MS Specialist.

Again, Welcome to the MS Forum, I hope you feel welcome and please know that you are not alone.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
The Following User Says Thank You to MSJayhawk For This Useful Post:
Miched (09-12-2012)
Old 09-14-2012, 10:44 AM   #4
Junior Member
(female)
 
Join Date: Sep 2012
Location: Sudbury, Ontario, Canada
Posts: 12
Miched HB User
Re: Possible MS???

Quote:
Originally Posted by MS22 View Post
Do you know where your lesions are in your brain (location)?

In the IMPRESSION portion of the MRI report, did it say that the lesions were consistent with demyelination or multiple sclerosis? MS lesions have a specific look and specific locations they like to settle in.

Numbness in MS tends to last in an exacerbation >24 hours, in fact it has to last >24-48 hours to be considered an exacerbation.

Your trouble with walking, is it related to weakness or stiffness, or pain?

If pain, that may be why you were diagnosed with fibromyalgia which can come with fatigue.

Brain lesions can come from a number of things. What are the differentials that are listed on the IMPRESSION on your MRI, that will give you an idea about what they are thinking.

I hope you feel better soon...no fun being in pain.

You might want to ask for some Baclofen or Flexeril for the muscle spasms.



This is the results from my MRI, ..... there are a few scattered signal abnormalities in the deep white matter bilaterally largest on the left being in the left frontoparietal region measuring 7.6mm in size and the largest one in the right being within the anterior aspect of the right lobe measuring 7mm in size these could represent nonspecific demyelinating processes of the deep white matter versus micro vascular ischemic changes......

can anyone help me figure out what this means... my doc said I either had 2 small strokes, which he said I didn't ... cause I am too young, or I have MS... now waiting to see Neuro.

thanks alot

 
Reply With Quote
Old 09-14-2012, 11:00 AM   #5
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,486
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Possible MS???

You cannot absolutely dismiss strokes because they can strike children and young adults. The neurologist will be the best person to go over your images- hopefully with you. My neuro always goes over the tests and images she has. I hope you get your answers!
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
Old 09-14-2012, 11:06 AM   #6
Inactive
(female)
 
Join Date: Apr 2010
Posts: 103
MS22 HB UserMS22 HB UserMS22 HB UserMS22 HB User
Re: Possible MS???

Quote:
Originally Posted by Miched View Post
This is the results from my MRI, ..... there are a few scattered signal abnormalities in the deep white matter bilaterally largest on the left being in the left frontoparietal region measuring 7.6mm in size and the largest one in the right being within the anterior aspect of the right lobe measuring 7mm in size these could represent nonspecific demyelinating processes of the deep white matter versus micro vascular ischemic changes......

can anyone help me figure out what this means... my doc said I either had 2 small strokes, which he said I didn't ... cause I am too young, or I have MS... now waiting to see Neuro.

thanks alot
Your neurologist will look over the MRI and determine if the lesions meet the shape and placement (which placement it seems they do), for the McDonald criteria. You will also possibly need further testing to meet that criteria. Look it up (google it), it is helpful to know what you are in for.

If they feel it is more vascular, you may be in limbo for a while.

It all depends on how the MRI looks to the neurologist as MS has a specific shape, ovoid-Dawson's fingers (yours are nonspecific), that is why more testing will probably be needed.

Sorry if that confuses you.

 
Reply With Quote
Old 09-14-2012, 11:06 AM   #7
Junior Member
(female)
 
Join Date: Sep 2012
Location: Sudbury, Ontario, Canada
Posts: 12
Miched HB User
Re: Possible MS???

Thanks for your input... had a really bad night on Wednesday... I was in so much pain thought I might have to to go emerg... but I knew they would do nothing... the pain in my arms and legs where soooo bad, I had to shake them to get relief for 2 secs.... I took the strap from my bathrobe and tied them around my legs really tight and it relieved it on and off. Of course I couldn't keep them tied... used the heating pad and 4 percocets later and two hours of it I had some relief.... I am so fed up of going to the docs..... I don't know anymore.

 
Reply With Quote
Old 09-14-2012, 11:11 AM   #8
Inactive
(female)
 
Join Date: Apr 2010
Posts: 103
MS22 HB UserMS22 HB UserMS22 HB UserMS22 HB User
Re: Possible MS???

Quote:
Originally Posted by Miched View Post
Thanks for your input... had a really bad night on Wednesday... I was in so much pain thought I might have to to go emerg... but I knew they would do nothing... the pain in my arms and legs where soooo bad, I had to shake them to get relief for 2 secs.... I took the strap from my bathrobe and tied them around my legs really tight and it relieved it on and off. Of course I couldn't keep them tied... used the heating pad and 4 percocets later and two hours of it I had some relief.... I am so fed up of going to the docs..... I don't know anymore.
Are you on any anttiepileptics for pain (neurontin, trileptal?) If not, call and ask for some...it works well for nerve pain.

 
Reply With Quote
Old 09-14-2012, 11:11 AM   #9
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,486
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Possible MS???

Nerve pain is terrible. I am on a nerve pain cycle right now and it has been with me since the second week of August. The heating pad is my main relief. On my arm (triceps and elbow) I have tried a cold compress, it works, but it does not last as long as my heating pad.

You might try a tepid shower. I have used this in the middle of the night just to get enough relief to sleep.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
Old 09-14-2012, 12:30 PM   #10
Senior Member
(female)
 
deb1125's Avatar
 
Join Date: Jul 2012
Location: Slidell
Posts: 139
deb1125 HB Userdeb1125 HB User
Re: Possible MS???

I had my appointment with MS specialist Wed. Saying no now but could be yes later. My fatigue has gotten so bad, I started researching back to CFS and learned that CFS actually has lesions also, and can be located in the subcortical area where mine are. Doc said mine are not typical of MS. I also read that thay are changing the name from Chronic fatigue to Chronic fatigue immunity disorder syndrome and that is should be classified along the same lines as MS. That and M.E. Strange last night, I was laying down and my left big toe started going into spasms and they moved up my leg somewhat. Than my leg and foot fell asleep. Today that leg is aching and my foot is tingling on and off. My GP has put me on Lyrica.

 
Reply With Quote
Old 09-14-2012, 12:35 PM   #11
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,486
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Possible MS???

Thanks for sharing that info Deb. I hope your home in Slidell was ok.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
Old 09-14-2012, 12:44 PM   #12
Senior Member
(female)
 
deb1125's Avatar
 
Join Date: Jul 2012
Location: Slidell
Posts: 139
deb1125 HB Userdeb1125 HB User
Re: Possible MS???

Besides having to restock an empty fridge/ freezer, all was good!
Thanks!

 
Reply With Quote
Old 09-14-2012, 01:26 PM   #13
Inactive
(female)
 
Join Date: Apr 2010
Posts: 103
MS22 HB UserMS22 HB UserMS22 HB UserMS22 HB User
Re: Possible MS???

Good luck Deb. I have a good friend who has what you have. Hope the Lyrica helps you out.
Feel better soon!

 
Reply With Quote
The Following User Says Thank You to MS22 For This Useful Post:
deb1125 (09-14-2012)
Old 09-17-2012, 09:11 PM   #14
Junior Member
(female)
 
Join Date: Sep 2012
Location: Sudbury, Ontario, Canada
Posts: 12
Miched HB User
Re: Possible MS???

Quote:
Originally Posted by Miched View Post
This is the results from my MRI, ..... there are a few scattered signal abnormalities in the deep white matter bilaterally largest on the left being in the left frontoparietal region measuring 7.6mm in size and the largest one in the right being within the anterior aspect of the right lobe measuring 7mm in size these could represent nonspecific demyelinating processes of the deep white matter versus micro vascular ischemic changes......

can anyone help me figure out what this means... my doc said I either had 2 small strokes, which he said I didn't ... cause I am too young, or I have MS... now waiting to see Neuro.

thanks alot
Hi do you know what this means "These could represent non-specific demyelinating process of the deep white matter vs....

Also when I had an episode where I was not able to walk for about a week I was stiff all over ... I'm not saying I couldn't walk , I just mean it was difficult and I walk like I was 100 yrs old... it was very weird... so hard to explain... the episode I had recently I felt like their was pressure on my lower back a tightness around me I guess... I had a hard time walking, sitting and lots of pain, this lasted about 3 days.... I also fell and lost all feeling in my left leg very rubbery feeling, also very weird. I spend most time in my bed trying to sleep because when I can finally fall asleep then I am pain free.

Thx for your help

 
Reply With Quote
Old 09-18-2012, 02:48 AM   #15
Inactive
(female)
 
Join Date: Apr 2010
Posts: 103
MS22 HB UserMS22 HB UserMS22 HB UserMS22 HB User
Re: Possible MS???

Your doc should do further testing to rule out MS. What you have stated sounds like an MS hug. You should describe that in detail and in length terms. The weakness you speak of could also be a separate exacerbation if different in time than the MS hug thing. This would qualify for dissemination in time per MS mcdonald protocol.

You will see what they say. You most likely need an LP, and some VEPs, and other BAERs etc.

Good luck.

 
Reply With Quote
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
The possible MS diagnosis halfadozen Multiple Sclerosis 3 08-24-2010 09:19 AM
Possible MS after taking Humira Ronnied Multiple Sclerosis 3 10-20-2009 04:28 PM
dx 17 yrs ago in denial, is it possible, now? dkw46 Multiple Sclerosis 2 09-12-2009 06:05 PM
TN, AIH and Possible MS? gjet68 Multiple Sclerosis 1 04-27-2009 09:58 PM
Possible MS? Henrysmum Multiple Sclerosis 8 03-09-2009 11:44 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



MSJayhawk (1009), MSNik (526), Snoopy61 (58), Whimpurr (13), J-one (13), shahila (12), JodiH (11), MS22 (11), KingBaxter (10), Prayer Warrior (8)

Site Wide Totals

teteri66 (1182), MSJayhawk (1015), Apollo123 (913), Titchou (862), janewhite1 (823), Gabriel (763), ladybud (760), midwest1 (671), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 05:21 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!