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Old 09-24-2012, 01:00 PM   #1
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Wink Left foot

Question and insight
Last week, while I was laying in bed. My left big toe started to spasm down my foot, it lasted a long time and actually worked it's way up my calf and the whole time I was getting pins and needles. After a while I stood up and my foot was asleep. As we speak I am sitting in my chair at work and it is happening slightly. I emailed MS neuro and he wants to do an MRI on my C- spine and T-spine. What different things could he be looking for?
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Old 09-24-2012, 01:16 PM   #2
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Re: Left foot

When I went downhill quickly in 2002 it was my legs and it was not until they did the VEP that they ordered the MRI to include my T-spine. I did not have any active lesions in my head or c-spine. They found active lesions on my t-spine. I would assume that your doctor will be looking for any active lesions which could be seen as causes for your problems.

Before bed you might try to do a bit of stretching. I often need to stretch the most at bedtime.
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Old 09-24-2012, 01:23 PM   #3
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Re: Left foot

What about muscle twitches all over the body? What causes that? By twitching I mean a limb will suddenly jump, leg, arm, hand, etc.
This is happening more often than not.

 
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Old 09-24-2012, 01:39 PM   #4
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Re: Left foot

Twitches like that can present when you are entering a sleep state. When I get tired, my twitches increase. Those which present as a normal part of your day can be caused by a lack of proper hydration or a nutritional deficiency or simply due to ________.

I notice that my twitching and jerking increase when I am tired or exhausted- especially mentally exhausted. Towards the end of my day I can get to shaking that one might think I was experiencing an earthquake.

For you, this could be your "cross to bear". It could be a simple problem with the way a lesion healed and what affect the scar tissue is contributing towards your problem.

I know that when I first asked my neuro he attributed them to my MS BUT he said it would be nearly impossible to find the specific area/lesion causing the problem. Still, discuss it with your doctor because you never know!!!!
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Old 09-24-2012, 01:47 PM   #5
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Re: Left foot

Well, when I am at work, I am drinking water all day long. I have 20 oz water bottle I keep filled all day. My blood work levels always come back good, no vitamin deficiency. But I think you are right, the majority of the time it starts is in the afternoon when I am starting to feel drained..
Thanks for all the info. MRI Wednesday

 
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Old 09-24-2012, 03:05 PM   #6
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Re: Left foot

Good luck and do let us know how it goes!
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Old 09-27-2012, 02:01 PM   #7
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Re: Left foot

Got my results on C spine and T spine MRI- all is good. So, do I just dismiss the tingling in my feet as I am sitting here and the muscle twitches all over and the muscle spasms in my toes/feet since all tests steer toward no MS or do I start looking down another path. I have been on Lyrica for 2 weeks, not sure what it is supposed to do because I feel the same. I am in bed before 8 every night and sleep til 6, by the time 9 am rolls around I could go back to sleep.. Just want my energy back and these sensations to stoppppppp. Sorry for the vent...

 
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Old 09-27-2012, 02:15 PM   #8
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Re: Left foot

What about your brain MRI?
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Old 09-27-2012, 02:32 PM   #9
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Re: Left foot

several scattered in the subcortical... demyelination most likely based on ischemia.. The MS doctor I went to said mine were not typical of ms.

Last edited by deb1125; 09-27-2012 at 02:36 PM.

 
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Old 09-27-2012, 02:49 PM   #10
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Re: Left foot

My concern would be that those lesions could be responsible for some of what you are experiencing. You do not have a mystery ailment because there is a proper answer. I would encourage you to seek a second opinion from a different MS Specialist. At the very least, if it is not MS, you deserve a proper referral to obtain the right answer.
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Old 09-27-2012, 02:52 PM   #11
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Re: Left foot

I agree, thank you...

 
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Old 09-27-2012, 02:54 PM   #12
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Re: Left foot

Here is a link to a US Government paper on Ischemia demyelination: http://www.ncbi.nlm.nih.gov/pubmed/16687062

I do not know if it will help.
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Old 10-02-2012, 02:09 PM   #13
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Re: Left foot

MsJayhawk-- Thank you I read the article on ischemia demyelination and it leans toward hypertension and migraines neither of which I have had. I am trying to recall, hyperintense lesions, does that mean they are new?

Last edited by deb1125; 10-02-2012 at 02:16 PM.

 
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Old 10-02-2012, 02:22 PM   #14
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Re: Left foot

Hyperintense lesions are bright, white spots shown on certain types of MRIs. They can be found on the brain, spinal cord, and liver among other areas of the body and can be related to among a varying number of diseases/disorders including multiple sclerosis, dementia, diabetes, and simple aging. You doctor would need to make that determination.
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