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Old 09-26-2012, 12:35 PM   #1
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Pain, fatigue, nausea, vomiting, derealization

Hi I haven't been diagnosed with ms but have been diagnosed with CFS & FM.
I've been on this board before & asked questions. To make a very long story short. I've had problems almost 14 yrs. At first I was hit with severe fatigue then the feeling like I'm living in a dream. It's called derealization & basically makes me feel drugged. It has never went away. My body also felt heavy, sore, tired. But I managed about 11 yrs. learned to deal with it. Then things slowely started getting worst 3 yrs ago. Pain set in. At first it was mild & mostly in my lower back. But I had a back injury in 05 I'd managed for yrs. Then my neck pain set in which radiates through my upper back & shoulders. That just got worst & even with pain meds, I'm always in pain. Often it's like a tooth ache that comes from my neck. Also so very uncomfortable. Pain meds do help this. Takes the edge off. Pain is always there. My pain is in my muscles & joints. I always have a mild head pressure/sinus pressure even though I've had all that looked at, allergy testing, tried celiac diet & tested for that. I've been tested for everything.
The fatigue & pain is worst in the morning. These days I have a series of meds so I can get off the couch & do stuff. It's tough. If I could I wouldn't leave the couch but its no way to live. However everything I do I make myself do.
I also go through phases when I feel like I'm always nauseous. It comes & goes, gets worst & gets better. Nausea rarely is there during the warmer months. I vomit often with the nausea. However drinking powerade zero seems to help. I get migrain like headaches. I vomit with or without the headaches. I think the nausea & vomiting is my bodys way of dealing with pain. But then I do that when pain isn't at it's worst & won't vomit when it is at the worst so I'm not sure...
Lately the nausea has been worst than ever before. I've been able to keep from vomiting but I think it's because I won't eat. I often feel like if I eat I will vomit so I don't. I eat a breaded item in the morning to take my tramadol. I don't usually eat again till in the afternoon when I eat another breaded item & take the med again. I don't usually eat dinner. If I do I'm doing everything I can to keep from getting sick. Eating mints help with the nausea.
I had an MRI 2 yrs ago & told there wasn't any lesions so I don't have ms. I don't think the Nuerologist was an ms specialist & like most drs I have seen, I didn't like him. I read that nausea & vomiting can occur with ms & can be a symptom of lesions forming. Which is why I'm here again.
I have many other issues such as brittle hair, extremely bad memory which is so bad I don't recall things that just happened, dry, burning, watery eyes & very dry mouth. I usually have insomnia but go through phases like I have lately where I fall asleep without having to take a muscle relaxer. I have had a sleep study which turned out normal.
I see two Rhumetologists, pretty much switching to a new one since my old one blames fibro for everything & really doesn't listen... I also have two primary doctors, one I see more than the other.
I don't know what to do. I am going to ask for a lip biopsy to test for Sjogrens, ive had negative blood work. I get tested for Lupis & RA yearly.
I don't know what to do. I don't know if my symptoms really point to ms or not... I just know that the last 3 yrs my pain has slowely gotten worst & continues to get worst. When I think it can't get any worst then it already is, I continue to hurt more & more. It an all over muscle & joint pain, just worst in areas like my neck (the worst).
If it weren't for savella & tramadol I wouldn't leave my couch. I'd live on it wishing for relief... I tried no meds 2 yrs ago & it didn't work. I have never been one to take any medication & now I rely on them.
I am thinking about asking for another MRI & to be sent to a Nuerologist that specializes in ms. But it took me so long to pay off the last one & now because of the sleep study It'll be awhile before that's paid off.
My husband isn't very supportive but has gotten better. I don't think he has a clue how bad it is & only seems to understand alittle when I get sick.
This has taken over my life & I'm so miserable. I never feel well. Always feel like I have atleast a mild flu. My best days I'm still very tired, hurt & just don't feel well.
I just need some kind of guidence...
I have thought about Lyme, tested negative. But I highly doubt I have it. Took 11 yrs before actual pain set in...
I'm sorry it's so long, I just really need help.
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

Last edited by thefarm; 09-26-2012 at 12:40 PM.

 
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Old 09-26-2012, 02:25 PM   #2
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Re: Pain, fatigue, nausea, vomiting, derealization

Hi. If it has been at least 2 years since your last MRI, the MSAA has scholarship/grants to pay for an MRI. You would need to fill out their forms and have the neurologist help. The MSAA might also be able to help you locate a neurologist specializing in MS near your location.

CFS can last for quite some time and some also have nausea with CFS. Your feelings of having the flu can also be CFS related.

No one likes to be sick and being ill all the time can certainly be a drag.

IF you can see an MS Specialist, please do not be disappointed if he stops and sends you to another specialist. The MS Specialist will need to eliminate all of the effects of the meds you take in addition to the other medical conditions you have. My cousin had to take 10 years out of his life to do noting due to CFS. He is now back living life to its fullest. I know that he shared many of the feelings you have expressed.

Again, find the MS specialist and see about the MRI grant.
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Old 09-26-2012, 02:44 PM   #3
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Re: Pain, fatigue, nausea, vomiting, derealization

Thank You I'll look that up! Worth a try!
I had one dr diagnose me with CFS then my first Rhumetologist says its a symptom of my fibro. Not sure how to understand it... I can't even explain if the pain is worst or the fatigue. I think it just depends on the day... Both are bad... Then the nausea & derealization just seems to make everything else worst.
I have had numbness but not as often ad it might be with ms... muscle weakness seems to always be there also. Clumsy. I lose my footing allot but don't usually fall down. I notice I drop things more these days. Was irritated the other day because a friend kept giving me a hard time which trying to peel apples. Kept dropping the apples, knife ect. The. Alittle later her & my husband decided to give me a hard time about how slow I am when i do anything. I generally have a sense of humor but not when it comes to these things that I can't control.
Anyhow, I have read able ms symptoms & not sure if the symptoms I have could be ms or not. I usually chalk it all up to my fibro. But I don't understand why I keep getting worst. Why I'm always so sick. Atleast I don't have an appetite & could use the weight loss... But I don't know how I even gained in the first place.
Is dry or burning eyes that overly water sometimes a symptom of ms? I assume the nausea is. I don't know. Just wish I had more answeres for everything. I don't deny having fibro, actually makes sense to me. But I know there is something else going on also but don't know what...
Anyhow, thank you for reading all this & your help
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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Old 09-26-2012, 02:57 PM   #4
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Re: Pain, fatigue, nausea, vomiting, derealization

Your derealization could be medication related.

Have you noticed foot drop? This was a vivid memory of mine from 1977. SOmetimes I would fall, but mostly I would catch myself. Climbing stairs was always a problem because I would trip going up stairs, but never down. Scuffed toes on my old shoes provided the foot drop evidence.

Some people with fibro have problems when a low pressure system hits (Barometric pressure drops). This can also lead to fatigue and pain both. You can check the fibro board herein.

I do not think that excess tears or dry eyes is MS related unless a specific area was affected. Often these conditions are age or simply physical problems. I experience dry eyes about 2-3 times a year. I carry a bottle of eye drops with me and with only 15 ml, Ihave gotten through the year with one bottle only.

Dropping things from your hands was something that hit me in 1982 prior to my diagnosis. I would encourage you to be careful as numb hands can experience cuts and bruises- I know I have my share of scars!

In the meanwhile, you are not alone as many others can empathize with what you are experiencing.
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Eternally blessed and eternally optimistic!<><

 
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Old 09-26-2012, 04:22 PM   #5
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Re: Pain, fatigue, nausea, vomiting, derealization

I'm not sure about foot drop... Sometimes when I walk I'll stumble because my foot just isn't lifting high enough, kinda like a dragging. Doesn't happen very often & never really paid attention to which leg or if its both.
I go up & down stairs slow because I hurt. Going down I have a hard time getting the right footing, hard to explain but with the low back pain & not bending my hips & knees just right it's like a fumble... I did manage to fall down our 3 steps not long ago but was able to catch myself ok.
Lol yeah I'm clumsy & have to be really careful. In the last week or so i've Burned my arm & a finger then also have cut 2 fingers. Managed to smash my thumb before that, my nail is black.
Anyhow, I just wish I could get answers to what's going on. I worry about not finding out until major damage is done or something. Things have been so bad & only got worst. I just don't know how much more I can handle...
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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Old 09-26-2012, 04:29 PM   #6
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Re: Pain, fatigue, nausea, vomiting, derealization

If you look at a pair of shoes which you wear often, you might see the evidence. Since my left leg started dragging when I get tired or fatigued, I could tell a difference in the soles of my shoes.

The kitchen and shop are two areas which are dangerous to me. I have burned and cut myself in both. Nowadays I might ask one of my sons to help me in order to prevent the accidents. I dismissed many of my earliest symptoms as "being clumsy". While some problems may have indeed been due to clumsiness, the majority were MS related.
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MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
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Old 09-26-2012, 07:48 PM   #7
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Re: Pain, fatigue, nausea, vomiting, derealization

I'll do that Thank You! I do know my right shoe treads always get worn down on the inside. I think it's the way I walk. It takes a long time before I notice it. Then it will bother me sometimes when I wear the shoe. Do you wear the shoe down at on the bottom?
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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Old 09-26-2012, 08:07 PM   #8
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Re: Pain, fatigue, nausea, vomiting, derealization

My "old normal" walk wore on the outside of both of my heals. My new normal- I wear through my left sole before i notice my heels. My rehabilitation nurse helped me pick out a pair of shoes in 2002 and I have kept using the same style (cross trainer). I did get a pair of dress shoes, but the do not feel great and if I wear them for 2 days in a row, my feet hurt. I also wear "Croc" style sandals around home which I like in the garden and I rarely wear socks unless I go to town or church or when the temperatures dip below 52 F (11.11 C)!


BTW, I should add that my shoes are velcro as fingers have coordination issues. It is also nice because I can easily adjust my arch comfort because I have a very high arch.
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MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

Last edited by MSJayhawk; 09-26-2012 at 08:10 PM. Reason: add

 
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Old 09-26-2012, 11:02 PM   #9
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Re: Pain, fatigue, nausea, vomiting, derealization

I agree, when you find something that works, why change it I had a pair of shoes given to me a couple yrs ago & they are still withstanding me lol They have elastic, no laces. I don't get out much though and around our property I have my farm boots, slip on no laces...
I got one of my kids the crock style shoes & he seems to like them. They are so nice & lightweight! Do they ever both your feet? I'm tempted to try them sometime.
I rarely go without socks. My feet always feel cold no matter how well my thyroid is doing...
__________________
~♥Tori♥~
Fatigue & Derealization (PTSD?) 1999
Hypothyroid~ 2003
Back injury~ 2005
Severe Degenerative Disk, Arthritis, Mild Scoliosis.
Fibromyalgia diagnosed 2009
Neuropathy
Migraines?

 
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Old 09-27-2012, 09:54 AM   #10
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Re: Pain, fatigue, nausea, vomiting, derealization

The "croc" sandals have always been comfortable until the sole starts to thin out- then they do not cushion against rocks. I like them in the yard work and garden because I can hose them off along with my feet.

I noticed in your signature that you have mild scoliosis. I recall one of the ladies in my office in Tokyo who had mild scoliosis. Though mild, it did cause some back pain and leg pain for her at least 2-3 times a month. This coupled with your degenerative disc can only add to the muddled picture going forward.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
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