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Old 10-09-2012, 08:09 AM   #1
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6 month repeat mri

I just had my 6 month mri and it says that there are no changes, mri was of brain only no contrast. I am still having burning skin on my arms and legs in certain areas, and the sensations change from burning to ice cold water being splattered on my to like a hot grease splatter. I still have what i feel is weakness although it doesnt keep from doing things even though i feel it as weakness in my right arm and leg. I have booked an appt for next week with my family doctor. So i won't get the official results til than but when i just talked to her secretary she said the mri was unchanged so my question is does that mean ms will be ruled out or will i have to do another mri again in 6 months. I have no balance problems or anything else other than the odd sensations and i get a pinching pain in the centre of my back that seems to be worse when the symptoms are bad but my t and c spine mri was clean. so i guess im just lost in limbo still.

 
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Old 10-09-2012, 10:32 AM   #2
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Re: 6 month repeat mri

Hi, thank you for your update.

Has your doctor ordered a VEP (Visual Evoked Potential) test? This can help to determine if there is a problem in your nervous system.

You mentioned that the repeat MRI was of your brain only. Was the MRI of your c-spine and t-spine also repeated?

If your doctor has followed the Revised McDonald Criteria, you should have some direction by now. Limbo land is not fun, but at least we are here with you!
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Old 10-09-2012, 11:35 AM   #3
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Re: 6 month repeat mri

Repeat mri was of brain only. When i see my doctor next tuesday i will ask her about the vep test. I imagine that will take sometime to get done i'm in canada so i don't know what the wait is for that kind of test. Although my repeat MRI was done within a week and results came in 3 days that was quit fast for canada. I also have ringing in my ears that i has been with me since january and never lets up. I don't see my neuro again til december only to start to the paperwork for my 1 year MRI repeat. my family doc. only ordered this repeat due to new symptoms but it showed no change so i don't know what to think. I can still work which is a good thing I can still drive (although i got a speeding ticket the other day ) So for that I am grateful. I just have all this unexplained burning and weakness feeling that makes me anxious and fustrated not knowing what is causing it. But i will ask for those test when i see my doctor next week. Thanks for the replies its good to have someone to talk to that doesnt look at you like your crazy

 
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Old 10-09-2012, 11:55 AM   #4
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Re: 6 month repeat mri

I see. Yes, Canada has its problems too, but it is nice that your doctor is being proactive.

I dug into some information for you after I replied earlier. I read two other stories about women who had experienced the burning sensation you described. One was eventually diagnosed with MS while the other was later diagnosed with Fibro. They did not share the tipping point where their diagnosis went towards MS or towards fibro, but at the very least, there are others out there with who you can certainly identify.

The ringing in the ear- tinnitus- does get annoying. I get pulsatile tinnitus, but for me I have found that it is a harbinger of impending problems should I not take action. Fortunately it has never persisted as long as your tinnitus! You might have your tinnitus looked at as a separate problem, because it very well could be. There are many people who have gotten relief from their tinnitus and I would not want you to miss the possibility of getting relief soon.

As to the lead foot, LOL, it is in my familial DNA too. I remember my great aunt at 84 got stopped for speeding at 120 mph. She said she was trying to get back to Colorado through Kansas before the sunset. The young patrolman escorted her the last 5 miles to the Colorado border at normal speed.
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Old 10-09-2012, 12:25 PM   #5
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Re: 6 month repeat mri

I seen an ENT in may for the ringing and she did a bunch of tests to me laying down and standing up and such as well as stuck a really long snake like camara into my nose and and sinus which was rather disturbing she ruled out menieres disease and said tht the ringing is probably from aggravated nerves. But it never stops and it is starting to drive me insane I want to jab something straight in there lmao. I will be asking for those tests next week thanks again

 
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Old 10-09-2012, 01:00 PM   #6
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Re: 6 month repeat mri

No worries. When my pulsatile tinnitus bothers me, I wear a pair of passive shooters ear muffs. They help me and lessen my tinnitus. Perhaps an Otologist (ear specialty) might better assist you?
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Old 10-10-2012, 08:56 AM   #7
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Re: 6 month repeat mri

Hi Soulsurvivor, I just read your post and went back and read all your previous posts. I am also in Canada so I understand the wait for tests to be done which is very frustrating. MS is difficult to diagnose in some instances but I can see where none of the doctors you are seeing are really pushing you in the right direction but instead in a circle and some being rude about it too. I don't know much but I will share the little I know with you. To rule out or confirm MS you definitely need an MS specialist. Your best bet is to ask your doctor to refer you to the nearest MS clinic. They also do diagnosis.

I should let you know I don't have a dx as yet but the tests results are pointing towards MS. I had symptoms years before but got worst in June when I was hospitalised and MRIs, spinal tap, blood tests were done. It's a waste of time to see the neurologist who I saw in the hospital in June and last month. Luckily for me my Nurse Practitioner that I see is very proactive and thorough. I was referred to the MS clinic and have an appointment for the 18th Oct. I redid the brain MRI last week with and without contrast but dont know the results. I say all that to say this; even though this is Canada you can get things done but it is having the right health personnels to point you in the right direction. What doctor says they cannot order certain basic blood tests? Your family doc seems to be the better one so ask her for a referral to the MS clinic where you will have to take all your MRis on a disc to them. It is also not true that it is the radiologist that has to order the MRI. I did 5 in June and 2 in September none of which were ordered by any radiologist.

I have some of the symptoms you have. The burning all over the body for years...which I took as part of my anxiety disorder. Then the cold water feeling, weakness in my right leg. I woke up in June numb from waist down and was hospitalsed and that was when I did the MRIs. It took months to go away but I am left with dragging my right foot and numb soles. I also get internal tremors from time to time. The worst so far is like my brain has gone for a long walk. I cannot express myself as I used to and it is embarrassing at times. My memory is a mess. Is it MS? Maybe. I am hoping to get an answer soon.

I pray also you will find the right resources to get an answer as to what is ailing you so it can be dealt with. In the mean time don't stress yourself over it as the symptoms will only get worst and you will not know what is causing what. The mind is a powerful thing. As MSJayhawk said the ringing of the ears could be separate so try to get your doc to refer you to an ear specialist since you have been to an ENT already. Good luck.

 
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Old 10-10-2012, 10:35 AM   #8
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Re: 6 month repeat mri

My family doctor had said she thought it was upto the radiologist to decide if they will use contrast when doing the mri. I am going to ask her to refer me to the ms clinic in toronto. I had asked to her to refer me to a ms specialist in hamilton but he is not accepting new patients. I had seeked him out and he had a perfect score with great reviews and also heads the ms clinic in hamilton but unfortunate for me not taking on new patients so i guess i have to go to toronto.

I will be calling my hospital and getting all my MRIs on disk so i'm prepared. I am in no way seeking to be diagnosed with ms, i just know that there is treatments that can slow progression and feel the sooner we all know what we are dealing with the better. thanks for the reply and goodluck with your appt. its right around the corner

Last edited by moderator2; 10-10-2012 at 10:38 AM. Reason: please do not post a commercial website for any reason

 
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Old 10-16-2012, 01:26 PM   #9
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Re: 6 month repeat mri

Update....So i seen my family doctor today. And according to the result paper from my MRI it says unchanged but the one lesion that was 7mm is now 6 and the other that was a subtle 3 is now 5 so i don't know how that is unchanged? So my doctor says i should get a massage and feels that i have some fibro type pain going on and that is when i stopped her and said i don't have "pain" i have burning and weakness and other weird sensations. But she doesnt' feel its ms cause there would have been some big change in my MRI so i asked her for a referral the ms clinic in toronto. She said they might not accept me because things don't add up I just asked her to make the referral and i will go from there. I have decided that if they will not accept me i will find a doctor across the border. I figure i wont need an MRI cause i will have the cd of my last and if they want to send me for 1 with contrast than i will work that out later.

 
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Old 10-16-2012, 01:53 PM   #10
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Re: 6 month repeat mri

Massage and MS are not friends. A shrinking lesion could be one that is scarring over while the other may be an active lesion. I would encourage a second opinion from someone who deals with MS. If you have MS, then a massage should be avoided because it can bring on new symptoms or aggravate old problems.
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