Just thought I would tell you that I was diagnosed at age 63. Many years ago, a doc told me that if I did have MS, it was probably benign.. Sounded "good," got a wrist brace for carpel tunnel.. Several years ago, a doc simply told me that my brain lesions were old age. Lesions on my spine along with clinical test diagnosed me 5 years ago.
Fortunately for me, I did not have such bad symptoms as you are having. I just hope that situation is resolved soon!
Thanks, Nik. I am having an Evoked Potential vison test and lumbar MRI Monday. Dr's name is Keller. I thought I would get a few more test results to have when I see another doctor, which I probably will. Do you have the name of the group from Penn? I live very close to Cherry Hill and would be willing to travel to Philly if I had too. If you have a Dr's name that would be great, too. My present Dr. keeps saying he doesn't think I have MS because my MRI was clear, even though there was one not-so-bright lesion on my last MRI a few weeks ago. I am NOT trying to say I have MS and the dr. doesn't know what he is talking about. I am concerned he won't listen to my symptoms inspite of the test results. Of the ones most commonly listed, I have just about all of them! (I'm holding off on depression...lol) If anyone has any other suggestions or thought they had MS but was diagnosed with something else, I'd love to hear from them. I had about 3 good days so far where my symptoms were much less, but as I write, both my legs from the knees down are tingling and feel numb again. Oh well. I DO appreciate your suggestions and concern. My present dr. said he would be willing to give me a referral for a second opinion and I will ask if that will get me in any quicker to see a real MS specialist. I can't imagine it helping since getting an appt.with a specialist always takes a long time. We shall see. Hugs to everyone.
Thanks LOMS. Your reply doesn't make me think I'm crazy (or too old) for considering the possibility that I could have MS. Believe me, I am not wanting it. I just want a diagnosis of something to give me some hope or closure to whatever it is that is going on with me. I had carpal tunnel in both hands and had that operated on about 5 years ago. I also had neuromas in my feet which hurt constantly. I had scerlrosing shots for them and it helped quite a bit. The only good thing I could find since I've had these symptoms is that my feet don't hurt because they have been affected by whatever is going on now. I laugh when I tell people that, but of course, anyone who has had trouble with their feet would be the only ones to appreciate this side-affect. I have a good friend who lived in Levittown for many years. Nice place. Thanks for your encouragement.
Hi, I have been going thru what you have, yes with one dR and no with other. This last visit my neuro told me I have no answers, her recommendation was to seek pscych help. I told her sorry doc but did that already and there is nothing wrong with my mind it is my body.They have done testing and found matter but call them inconclusive matter. I know how difficult it is been goin thru this for some time.
Agreed on all accounts, Whimpurr!. We can encourage each other and those of us trying to find answers. Like you, I know from Where my strength comes and to Whom to look to for comfort.
Had the evoked potentional today and the tech said she didn't "think I had anything to worry about" but that the dr. had to read it. Unless there is something wrong, I won't get that test result until Jan. 2. The only thing that looked strange to me while taking the test is that the small red box lost color as the test progressed. I asked the tech if that meant anything and she said to mention it to the dr. I already know that some people lose color sense but I don't seem to see it less normally.
I want to say I so appreciate these healthboards and those who participate. I can find all kinds of information about MS online, but I can't find the little bites and pieces and nuances I can learn here from people who actually are experiencing symptoms and can give a more definitive definition of what's going on. It is a great help. Take care, Whimpurr.
I would think that the technician would have noted the color loss in the report. SOme color loss might be caused by the white boxes "washing out" the red. (Both of my VEPs- 1982; 2002- used a B/W moving checkerboard pattern.)
My second VEP was stopped early because the technician said that it was overtly noted that I was showing problems.
Due to the extreme sensitivity which can be measured by the VEP, your neuro should be able to tell you if there is something impairing your nervous system.
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><
Thanks, JayHawk. I was wondering during the test if the black and white flashing was more the cause of the color change than losing it by my eyesight. The tech did not offer to note it on her report; only told me to tell the doctor. It is really good to know how sensitive this test is. That's encouraging! Now we wait again. I am not the nervous type nor a worrier, but the thought has occurred to me that if I don't have MS, do I have something worse? Just rhetorical thinking; not asking. My lumbar MRI test went smoothly and I have a copy of the disc. A copy of the report will also be sent to me; a good thing. I feel like a jig saw puzzle that has started to be separated into colors and corners but with no rush on the part of the puzzle worker to get it finished. I am learning patience while being a patient. Take care, J.