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Old 11-19-2012, 03:16 PM   #1
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Exclamation Got Copies of MRI reports:

Well, I got CDs of my 2 MRIs but they don't work on my computer! *sigh* Also got the written reports that go with them but my Neuro follow-up isn't until the 28th of this month.

From what I can tell, the same lesions were seen but apparently there were no new ones. It did state that the largest lesion was 8mm. Is that a typical size, small or large?

The report from the MRI in June said "Several non-enhancing hyperintense white matter foci in the deep white matter of the left frontal lobe suggest a demyelinating process."

The report from Friday's MRI said: "Stable nonenhancing T2 bright white matter hyperintesities. Common etiologies can include demyelinating disease or migrain headaches."

Comments? Thoughts?

THANKS!

 
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Old 11-19-2012, 03:19 PM   #2
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Re: Got Copies of MRI reports:

My suggestion would be that you place your report back in the envelope and enjoy your Thanksgiving! You really need to go over the images with your neuro for the full picture.
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Old 11-19-2012, 03:22 PM   #3
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Smile Re: Got Copies of MRI reports:

Quote:
Originally Posted by MSJayhawk View Post
My suggestion would be that you place your report back in the envelope and enjoy your Thanksgiving! You really need to go over the images with your neuro for the full picture.
Aw, come on now, JayHawk! You usually have SOMETHING to say!
Just your opinion ... pleaaaaaaaaaaaaaaase????

 
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Old 11-19-2012, 08:42 PM   #4
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Re: Got Copies of MRI reports:

Because an MRI is not a specific test for MS, I would not want to tell you one thing and have it be something else. I suppose that it is like peeking at a Christmas gift early. I have often seen people who get a report and then spend hours of pain and suffering over something which was not affecting them. The best thing you can do is to relax and allow your body to get better.
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Old 11-20-2012, 03:10 AM   #5
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Re: Got Copies of MRI reports:

Whimpurr,
Because it says Non -ehancing, that means that your lesions (scars) were not lit up on the MRI under contrast, which means they are old....and havent recently formed...and usually when they are old and not recent, they are NOT the cause of any current or new symptoms.

Because it says stable, they didnt change from test to test

Because it says "Common etiologies can include demyelinating disease or migrain headaches" it means the radiologist wasnt willing to put himself out there and give a specific reason for the lesion. He isnt willing to commit that they are MS type lesions OR headache type lesions.

8 mm is large. and not indicative of MS lesions. That lesion is more than likely not caused by a Myelin attack or MS...however, that doesnt mean it cant be...its just highly unlikely. MS lesions have a specific size, shape and placement.

Now, here is the million dollar question. When you see your Neuro- will he write you off as not having MS because the radiologist isnt sure....OR will he go over the films with you and point out the larger lesion and give you a reason for its being there? Will he show you the smaller ones and explain due to placement what this particular lesion might be doing to affect your body? As in "this coordinates with the numbness you are experiencing on the left side of your body" or "this coordinates with the gait issues you have experienced" ? A good neuro, wont read the report from the Radiologist and WILL make his or her own assumptions based on what they see.......a bad Neuro will take what the radiologist said as gospel and tell you based on someone else's opinion, whether you have MS or not.

Pay attention to what your doctor says. Question anything you dont understand. This is your brain! Make sure you understand what the doctor is telling you. And, if he isnt telling you enough specific information, tell him you want a referral to someone better equipped to make Multiple Sclerosis diagnosis's.

MRIs can change from week to week. What doesnt show up now could show up next month...which is why they normally do them every six months in the dx phase.......after 2 years if the MRI is still stable, without change, thats when they rule out MS in most cases. Unless new symptoms show up, there is no reason to keep repeating them indefinately.

I hope this is good news...and that you dont have MS...but, from the little you read to us, its impossible to know which way this is going to go. Remember, not all Neurologists OR Radiologists are specialists in this type of thing, and now that you have the tests in hand; its important to make sure whoever reads them is qualified !

Happy holidays. NOW go rest and relax because you wont get any more information until a doctor reviews those films!

Hugs
Nikki
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Old 11-20-2012, 04:32 PM   #6
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Re: Got Copies of MRI reports:

So what is a typical size for an MS lesion then?

 
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Old 11-20-2012, 05:07 PM   #7
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Re: Got Copies of MRI reports:

A usual MS lesion is between 1 and 5 mm...but thats not to say it cant be bigger, it can be.....its the shape and placement which also determine if its MS related or not. My largest one is 6 mm and its definately a MS lesion....Ive been told this is highly unusual.....

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Old 11-20-2012, 05:17 PM   #8
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Re: Got Copies of MRI reports:

I Was confused by something else you wrote . You said something like an old or inactive lesion doesn't cause symptoms? I would think that because it was a scar over a nerve that it would cause a permanent damage to the "injured" area like evenutally the black holes that can form?

 
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Old 11-20-2012, 05:28 PM   #9
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Re: Got Copies of MRI reports:

Let me try to clarify, I can see why you are confused...(sorry!)

Symptoms usually do not stay forever. When they begin, if they are a new symptom, they are usually being caused by an active lesion. These show up as glowing or white, or enhancing on an MRI... For most people, who have Relapsing/ remitting MS, those symptoms usually do go away eventually.....now, I have some symptoms which are my onset symptoms- the ones which took me to the ER wondering what in the world was going on with me- which never stopped. I have had numb/ tingling hand and fingers for 9 years now...those lesions are not glowing, and they are very old. The only way a black hole forms (and I have several of those too) are if you get soo many lesions in the same area, that there isnt enough brain tissue to support them...and then the dissipation of the brain tissue shows up as a black hole on an MRI. IT doesnt happen to everyone.

Now, a NEW symptom, one which you havent previously had before, will almost always show up as enhancing....an old lesion, even if you are still having problems or pain, will not......my old lesions which caused my onset symptoms are either non enhancing, or gone by now...not because they healed but so many new lesions formed in the same place, they dissappeared and a black hole remains behind.

You asked about permanent damage. Its a 50-50 chance that this will happen. Normally, with R/R MS, permanent damage doesnt happen....as the disease progresses, or if you have a more progressive type rather than relapsing/ remitting, permanent damage is more likely....in this case, it doesnt mean that the lesion is still active, or that the pain stil exists...it could simply be a weakness in a limb, or gait....or a noticeably slower reaction time in a reaction. Does that make sense?

Old attacks can heal completely...leaving behind a scar/ lesion, but no symptoms. New lesions can heal completely leaving nothing behind.....or they can leave a scar with no damage....or they can leave a scar with some damage...it all depeneds on what extent the myelin is attacked...

Very hard to explain, Im sorry if Im confusing you further....But picture a mouse and an extension cord...if you chase the mouse away before he chews through the entire thing...minimal damage...a scar for sure- but possibly the connection is still good. If he chews through it completely, more than likely permanent damage.....it can heal partly (like wrapping it in electrical tape) or completely- some damage does actually rewire itself to find another pathway (the amazing brain!) but the myelin will not repair itself, the scar will always remain behind.

I really better stop before I confuse you further....I hope this helps alittle?
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Old 11-20-2012, 09:20 PM   #10
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Re: Got Copies of MRI reports:

OK, I understand now and that is pretty much what I had thought. I guess I am just concerned about having noticeable lesions but only in one tested location (brain) and no new ones since 1st MRI five months ago . Just trying to sort of prepare myself for how my next neuro appt might go. I am just afraid of being put off again and again to wait and see changes in my MRI. I asked about having a thoracic one done this time but my neuro said that you have to stay in the machine too long so they don't like to do those very often. This time though they only did my brain and did not even do the cervical spine this time since there were no lesions there 5 months ago. I just don't like feeling like she is going too slowly with the testing. AT this point I am hoping for some other form of testing like the evoked potential or EEG.

 
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Old 11-20-2012, 09:46 PM   #11
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Re: Got Copies of MRI reports:

It just takes 2 lesions to render a diagnosis for MS if everything else is eliminated as a possibility. If you do not have new lesions, consider it a blessing. Lesions can be caused by infections, high fever, etc.
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Old 11-21-2012, 03:57 AM   #12
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Re: Got Copies of MRI reports:

Whimpurr,
I think you should ask about having the CSpine repeated and possibly doing the Thoracic as well. Its very uncommon to have lesions in the thoracic spine; especially with a new diagnosis, but it can happen.

Having all 3 areas done, would keep you in the machine for a very long and very uncomfortable time..but having just the C and T spine done, is about 45 minutes....not too bad.

Ask. All you can do is ask.

As for what Jayhawk said that you only need 2 lesions, technically that is correct...but its 2 lesions with corresponding symptoms- AND a history and physical which shows signs of MS AND everything else has to be ruled out....tests like an Evoked potential can rule out nerve damage. For instance I told you that I have extensive numbness and tingling in one hand/ fingers...for a while, they said "Carpal Tunnel". An evoked potential test can rule that out and has - several times..we now know my numbness is a MS thing. BUT, it doesnt confirm MS, it simply helps to correlate the pain and symptoms with the disease.. which, in the end, is the way MS is dx.....

Unfortunately for you, this is going to take some time to get to the bottom of...but on a brighter side, you wouldnt want a dx unless they were 100% sure.

Hang tough my friend....and happy holidays to you. Im sending prayers for strength your way!
Nikki
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