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Old 11-28-2012, 11:28 PM   #1
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MS Symptoms ?

I have looked threw the forums . Also Health sites and othe forums .
Does anyone know if you can have symptoms not listed on health sites like Mayo clinic or forums .

I have had Ringing in both ears comes and goes. But happens quite often . Loss of hearing like faded in and out twice .
Also lost some of my arm strength about a week ago and has not come back .
Flushing or burning feeling in chest abdomen and left testicle . Very brief doesn't hurt at all .Twitching Left arm and lower right lip . Very hard to notice but easy to feel it . Neck has a burning sensation like all the time . Pain in feet like cramping up alot . Potasium is good and all routine blood work was good . Although lipase and Amylase were flaged as high . Had ultra sound , everything was good .

So my question i guess is Can someone with MS have different symtoms or new symtoms not listed on a health site or even told by a doctor ?

I have a EMG on wednesday next week . So i guess it will give me an idea and if MS is possible then they will run the Spinal Tap .

But the waiting is terrible .

 
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Old 11-29-2012, 03:25 AM   #2
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Re: MS Symptoms ?

Hi Thysis and welcome to healthboards.

Your question is a double edged sword. As reputable as many of the facilities are which you mention; looking up symptoms is a really bad idea. You will always be steered wrong, especially with regard to MS, because MS mimics 300 other diseases! That means just because you have SOME or even MOST of the symptoms of MS, you will still probably have a 1:300 chance of having some other illness/ disease.

To further complicate it, MS is a "snowflake" disease, meaning no two cases are documented exactly alike. Although many of us have the more common symptoms alike, some of us have pains or issues which none of us have ever heard anyone else state...so yes, it is possible that your symptoms are not documented...

However, ringing ears, tintinitis, is usually explained easily enough and there are severeal tests which can tell a doctor exactly what is going on, why its happening. Have you been checked out by a ENT? (Ear, nose and throat specialist) . You really should if this persists.

MS is a disease of the central nervous system. Because this includes the brain, the body doesnt always respond in an explainable way. There is so much about the brain we dont understand yet. I hope you get your answers soon! Good luck with the EMG. Please do realize that both an EMG and LP will not conclusively diagnose you for MS, but they are in fact being done to rule out other (mimic-ing) diseases, which is exactly how you get closer to answers.
Nikki
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Old 11-29-2012, 03:54 AM   #3
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Re: MS Symptoms ?

Quote:
Originally Posted by MSNik View Post
Hi Thysis and welcome to healthboards.

Your question is a double edged sword. As reputable as many of the facilities are which you mention; looking up symptoms is a really bad idea. You will always be steered wrong, especially with regard to MS, because MS mimics 300 other diseases! That means just because you have SOME or even MOST of the symptoms of MS, you will still probably have a 1:300 chance of having some other illness/ disease.

To further complicate it, MS is a "snowflake" disease, meaning no two cases are documented exactly alike. Although many of us have the more common symptoms alike, some of us have pains or issues which none of us have ever heard anyone else state...so yes, it is possible that your symptoms are not documented...

However, ringing ears, tintinitis, is usually explained easily enough and there are severeal tests which can tell a doctor exactly what is going on, why its happening. Have you been checked out by a ENT? (Ear, nose and throat specialist) . You really should if this persists.

MS is a disease of the central nervous system. Because this includes the brain, the body doesnt always respond in an explainable way. There is so much about the brain we dont understand yet. I hope you get your answers soon! Good luck with the EMG. Please do realize that both an EMG and LP will not conclusively diagnose you for MS, but they are in fact being done to rule out other (mimic-ing) diseases, which is exactly how you get closer to answers.
Nikki
Thankyou so much for the reply . Been going nuts . Ya i think ima wait for the Neurologist i have to Diagnose me . The internet is driving me nuts . So many posibilities . I will keep you informed . If i do infact have a disoder i will post all my symptoms from the get go to now . May help alot of people here .
Again thanyou for the reply .

 
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Old 11-29-2012, 09:48 AM   #4
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Re: MS Symptoms ?

Welcome.

I get pulsatile tinnitus which is the sound fading in and out like a helicopter approaching and departing. For me, this is caused by MS. About 6% of MSers can experience hearing problems and or loss of hearing. At one time this was not considered as an MS problem. Though rare among MSers- it does present.

That said, you need to know if you have MS and if your hearing issues are MS related.

When you go to read Dr. Internet's opinions and prognostications, you will find "common lists". There are indeed symptoms which MSers will experience, but they also may not. If you find a list of 10 symptoms, consider it limited. Also, if you have MS in the early stages especially, you may not perceive the symptoms and can miss them.

The sensations you described can be caused by cardiovascular concerns as well as neurological concerns. I would start by getting a general check-up with a GP and eliminate any non-neurological problems. A blood test would fit into this testing. Once these are complete and if no answer/resolution is available, then move to an MS Specialist because they will run you through testing which can point you towards another specialist or to MS.

Thanks for posting!
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Old 11-29-2012, 06:32 PM   #5
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Re: MS Symptoms ?

You are very welcome. I hope you find relief and answers soon. Its very frustrating not knowing what is going on, but knowing something is wrong!

Be careful with the internet. Its not monitored. By looking up symptoms, you are confusing yourself...and who knows how many diagnosis's you are missing, by assuming that the first one which pops up is what you have going on.....MS is so individual. It could be MS, but it could be 300 other things. We often tell people to beware of the internet because of this.

Im sending you prayers of strength...we are here if you need to vent.
Nikki
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Old 11-30-2012, 04:30 AM   #6
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Re: MS Symptoms ?

I went to the ER yesterday . I woke up with a loss of feeling or strength in right arm . Then it developed to the legs . I don't think MS does that . They did a EKG and everything was good . Checked my limbs for lose of strength and it was good . I tried to tell them only i can tell . Its very lillte bit but enough to notice . When doing activities . I told them about my hearing loss in left ear , it was like someone was turning down the volume then back up . Happed twice . Vision has been funny . Looking at suff for a long time as if i was in a trance .And sometimes blurry vision. People ask what am i thinking of when i do this and i tell them nothing i space out .

The right arm and feels better , legs still feel week and crampy . Feet cramp up once in awhile . Left arm still weak and heavey feeling . A ways back like a month ago i was having symptoms of like seisures . I would be dreaming i was choking and woke with a mouth full of saliva and couldn't swallow . Finnally after 5 or 8 sec i swallowed . Happed three or four time so far . Still have heaadaches here and there . More like pressure . Also have ringing in the ear . Like a constant ring that last 1 to 2 min , happens offten.

ER ran blood work evrything was good . They are stumped there . They said definetly get the EMG done on wednesday and follow up with my neurologist .

Thanks to all that replyed and wish you all the best .

 
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Old 11-30-2012, 04:43 AM   #7
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Re: MS Symptoms ?

During the night I will have swallowing issues if I do not sleep on a slight incline with my upper body. Just a slight incline, for me, makes a big difference.

I am glad you went to the ER to rule out things like your cardio. Hopefully a follow-up visit with the neurologist will bring a resolution. Stay strong!
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Old 11-30-2012, 04:47 AM   #8
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Re: MS Symptoms ?

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During the night I will have swallowing issues if I do not sleep on a slight incline with my upper body. Just a slight incline, for me, makes a big difference.

I am glad you went to the ER to rule out things like your cardio. Hopefully a follow-up visit with the neurologist will bring a resolution. Stay strong!
Will do MSjayhawk and thanks !

 
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Old 11-30-2012, 12:41 PM   #9
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Re: MS Symptoms ?

Thysis,
Im sorry you are going through as much as you are. Its terrifying, I know. Im glad you went to the ER, because the tests they ran there, are important to rule out more serious things...

Now you do have to get the EMG done and talk to your neuro for sure. Hopefully it wont show anything, but then again, maybe finding out what is going on would actually be a relief!

Neurological symptoms present in so many different ways, that it is possible that this loss of strength you mention is VERY REAL and it could come and go...please keep us posted after your appointment and let us know what you find out.

Sending you hugs and prayers for strength!
Nikki
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Old 11-30-2012, 12:52 PM   #10
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Re: MS Symptoms ?

Quote:
Originally Posted by MSNik View Post
Thysis,
Im sorry you are going through as much as you are. Its terrifying, I know. Im glad you went to the ER, because the tests they ran there, are important to rule out more serious things...

Now you do have to get the EMG done and talk to your neuro for sure. Hopefully it wont show anything, but then again, maybe finding out what is going on would actually be a relief!

Neurological symptoms present in so many different ways, that it is possible that this loss of strength you mention is VERY REAL and it could come and go...please keep us posted after your appointment and let us know what you find out.

Sending you hugs and prayers for strength!
Nikki
Thanks Nikki !
I definetly will keep all informed , and if i do infact have a illness . I will track it back to day 1 . And i'll post all symptoms here as a timeline for everyone.

 
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Old 11-30-2012, 05:22 PM   #11
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Re: MS Symptoms ?

Best of luck to you Thysis. I think your timeline idea will be helpful to others in your situation who come here just to browse and read of others who have been "there". I hope you find out its nothing that cant be fixed, but if you do happen to have MS or another autoimmune disease, Im sure you will find a world of support here on the healthboards.

Be careful what you read out there on the Internet. Its always good to read about others experiences, and how they reach answers....but just looking up symptoms wont really get you anywhere but confused and probably scared. So many people fall into the trap of diagnosing themselves on symptom checkers- only to discover they made themselves sick with anxiety over nothihng.....

Real people, sharing real situations, is what makes this work.....so thank you for sharing yours!
Nikki
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Old 12-01-2012, 03:32 AM   #12
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Re: MS Symptoms ?

Quote:
Originally Posted by MSNik View Post
Best of luck to you Thysis. I think your timeline idea will be helpful to others in your situation who come here just to browse and read of others who have been "there". I hope you find out its nothing that cant be fixed, but if you do happen to have MS or another autoimmune disease, Im sure you will find a world of support here on the healthboards.

Be careful what you read out there on the Internet. Its always good to read about others experiences, and how they reach answers....but just looking up symptoms wont really get you anywhere but confused and probably scared. So many people fall into the trap of diagnosing themselves on symptom checkers- only to discover they made themselves sick with anxiety over nothihng.....

Real people, sharing real situations, is what makes this work.....so thank you for sharing yours!
Nikki
A quick question . There doing a EMG wednesday and it says EMG-LCN . What does that mean ? Also she said she was going to do my legs . But didn't mention the arms . Now if im only say having problems with the left arm , should she be including that or does it not matter ?

 
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Old 12-01-2012, 07:58 AM   #13
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Re: MS Symptoms ?

An EMG is a test known as a electromyogram which is looking for abnormal electrical activity of the muscles. The LCN part is for lower cranial nerves, which is what they are doing the test for. Apparently, they are looking for nerve abnormality in the lower spinal area, usually of the neck.

Because more than likely a tech will be doing the test, you probaly SHOULD call your doctor on Monday to ask them if they want to include the arms as well as the legs in the test, that way additional orders can be given.

THis test, wont give you a conclusive dx of anything, but wil tell the doctor if there are abnormalities in the conduction of muscles. If there are, it points in a direction of other diseases, besides MS.

I had this test performed on my hands and arms when I had numbness and tingling in my hands and fingers. They were looking to rule out carpal tunnel, which they were able to do. By ruling out carpal tunnel, we were then able to determine that the numbness is being caused by a lesion, not by actual muscle damage of my hands. See how that works?

Right now, they are looking to make sure that the signal from your brain is working and that the legs themselves arent the problem. Based on you saying that the pain is moving around, Id be willing to GUESS that its not going to show anything..that this is ALL being caused by lesions in the brain. The next obvious step will be MRIs of the brain and spine.

Hope that helps.
Nikki
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Old 12-01-2012, 08:23 AM   #14
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Re: MS Symptoms ?

Quote:
Originally Posted by MSNik View Post
An EMG is a test known as a electromyogram which is looking for abnormal electrical activity of the muscles. The LCN part is for lower cranial nerves, which is what they are doing the test for. Apparently, they are looking for nerve abnormality in the lower spinal area, usually of the neck.

Because more than likely a tech will be doing the test, you probaly SHOULD call your doctor on Monday to ask them if they want to include the arms as well as the legs in the test, that way additional orders can be given.

THis test, wont give you a conclusive dx of anything, but wil tell the doctor if there are abnormalities in the conduction of muscles. If there are, it points in a direction of other diseases, besides MS.

I had this test performed on my hands and arms when I had numbness and tingling in my hands and fingers. They were looking to rule out carpal tunnel, which they were able to do. By ruling out carpal tunnel, we were then able to determine that the numbness is being caused by a lesion, not by actual muscle damage of my hands. See how that works?

Right now, they are looking to make sure that the signal from your brain is working and that the legs themselves arent the problem. Based on you saying that the pain is moving around, Id be willing to GUESS that its not going to show anything..that this is ALL being caused by lesions in the brain. The next obvious step will be MRIs of the brain and spine.

Hope that helps.
Nikki
Yes Definetly help me .
You guys here are so awesome . Thankyou so much for that info . I will call doctor monday to see if they can ad the legs + arms .

 
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Old 12-01-2012, 10:15 AM   #15
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Re: MS Symptoms ?

Good luck! Keep us posted!!
Nikki
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