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Old 12-07-2012, 04:32 PM   #1
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Numb feet & toes curling in

Today my feet feel like I have an ace bandage or arch support on & the whole wrap around area feels numb. On my right foot my last three toes keep curling in. Anyone else familiar with this?
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Old 12-07-2012, 04:40 PM   #2
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Re: Numb feet & toes curling in

Anaya,
Please take a minute to breathe. You are very anxious and its apparent in your posts. This is NOT a MS thing. Numbness can be a symptom, but not the type of numbness that comes and goes...MS numbness is caused by permanent nerve damage from an attack on the brain or spine which destroys the myelin, resulting in an appendage being numb. It doesnt come and go..until they can figure out how to regenerate nerve damage (and this IS being studied at length) once its damaged, its damaged.

Youre having alot of symptoms this month. I just took a look at all your posts. Jaw pain, burning fingertips, heat issues, now foot pain....DO you think that some of it could be anxiety? Im not suggesting its all in your head- Im definately not trying to minimize your symptoms- but anxiety can present much like MS ..and its very real. Have you spoken to your doctor about getting you some anti anxiety meds to help you cope with all that you are going through? Im alittle worried about you. I wish I could tell you that you have classic MS symptoms, but actually you dont. Most of what you have posted about sounds alot more like vascular symptoms, or even fibro symptoms...

What are your doctors doing to rule out MS? Where are you with testing?
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Old 12-07-2012, 05:51 PM   #3
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Re: Numb feet & toes curling in

I just had a brain MRI, with & without contrast,& so lab work the ms specialist said he's not ruled out ms & he's checking for other auto immune diseases. I go back on 12.20 for my follow up.

The issue with my hands/fingers is Reynaud's, my fingers turned purple while I was at my initial visit with him.
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Old 12-07-2012, 07:08 PM   #4
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Re: Numb feet & toes curling in

I wrapped my hand in 1982 because it hurt so much and the wrapping relieved the pain. Just make sure that if you wrap it that it is not too tight. Before wrapping, you might try double socks. During the winter I wear 2-3 layers of socks sometimes.

When the temperature drops below 52 F (11.11 C), my hands and head are affected. I wear a sock cap and some insulated gloves. You can try some gloves designed for arthritis which reflect your body heat back to you. If you watch the weather, temp, barometric pressure, etc. you might discover your temperature tolerance range.

Get your mud-gloo built so you have a playhouse for the grand kids!

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Old 12-07-2012, 07:15 PM   #5
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Re: Numb feet & toes curling in

MSJayhawk, my feet are not wrapped they feel like something is wrapped around them. It's really cold in the hospital & I do have on two pairs of socks but they are not tight.
I've been having foot pain & numbness for a while but the "wrapped sensation" & my toes curling is new.

I can wait to build the "Cajun Igloo" with my Rugrats!!!!
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Old 12-07-2012, 07:38 PM   #6
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Re: Numb feet & toes curling in

You might try to soak them in cold water and if this does not work- warm water. I do this during the summer when my hands have difficulty. The temperatures in the hospital can make you feel cold! Although your feet might feel like the are wrapped, experiment with another layer, thicker socks, electric sock, or wrapping them tightly. In 1982 I wrapped my hands and the "added pressure" actually eliminated the pressure and pain I had. It does not sound logical, but MS is not a logical disease! It is the same course when I used my heat intolerance to fight my nerve pain. You might need to experiment, but I think you can find an easy remedy. The pain is not fun and it can be painful and continual to the point of interfering with your rest- and with "rug rats", there is not much time for rest!

For your Cajun Igloo, get a dog-gloo and cover it with some mud. It will be a nice, waterproof and insulated place!
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Old 12-07-2012, 08:07 PM   #7
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Re: Numb feet & toes curling in

MSNIK the numbing I'm experiencing is not going away its spreading on my feet. This has been going on a while & I thought it was because my shoes were to tight or I had on to many pairs of socks so I ignored it. I wear extra socks & tights under my pants because my legs legs hurt really bad when they are cold & my feet constantly feel cold.
None of the numbing, tingles, pins/needles or pain I experience comes and goes; it's all been pretty consistent.

Yes, I'm dealing with a lot of stress but I'm not anxious. I'm just looking for answers & treatment for my symptoms.
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Old 12-08-2012, 05:34 AM   #8
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Re: Numb feet & toes curling in

Anaya.
I wasnt trying to minimize your symptoms or say it was all in your head. Turns out I was right. It is vascular in nature. Reynaulds is usually going to affect your fingers first and your feet second. Its a vascular disease and cirulatory.
It sounds like your Reynaulds has moved to your feet. Which isnt uncommon and can be relatd to MS, or may be a standalone disease. The hardest part about a MS dx, is that so many things can be related, or they can just simply be comorbidities. Sounds like you have alot going on.

Stess will not help this. Not that there is anyway to make stress go away when you are dealing with so much, but it will aggravate your symptoms. Some help, in the form of an antianxiety, like Xanax would probably help you to get thru the worst of this. Even if you only took it at night to sleep. When I was first dx, I had completely numb fingers and hand- lost my vision in one eye. Went from running marathons and working 50 hours a week and going to school 5 days a week, to finding out I had MS in less than 72 hours. I went to bed fine one night and woke up thinking I had had a stroke...it was terrifying. I was prescribed Xanax PRN (as needed) and only took half of the lowest dose, only once a day.....I stayed on it when I needed it, and now, even 8 years later, i still have a PRN prescription available to me. Ive never refilled it. Its always expired before Ive used the 30 pills. I probably take 2 a month.....but the point is, when my mind wont shut off, when I know I need a good nights sleep, if I happen to be extremely stresed out about work, family, the holidays- whatever, I will pop on. Only because I know Ill feel better after a good nights sleep.

I really feel for you. Youre getting hit from all ends.....but it does sound like if you have a definate dx of Reynaulds, this is exactly that, which is what it sounded like to me when you posted it. Your MRI will be telling..unless there is a very specific lesion causing this, they are going to tell you to get it checked by whoever dxd Reynaulds in your fingers.

Please feel better...and do your best to ignore this until your appointment. And, Im sorry if I made you think I was saying its caused by anxiety- it wasnt my intent. My intent was to point out that with all that is going on, unless they find quite a few lesions causing this exact problem, it sounded to me like you are being hit with something unrelated to MS. And, now that you have said you have a Reynaulds dx, I can tell you that its probably what is causing your feet pain as well.

Make sure you are wearing cotton socks. No nylon blends...I wouldnt even wear wool....try to keep the air circulation good in your socks...and use alot of thick lotions/ creams to keep them from being dry. Dry skin tends to attract Raynaulds as well. feel better..
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Old 12-13-2012, 12:24 PM   #9
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Re: Numb feet & toes curling in

My daughter was release Monday and my grandson is still baking.
MSJayhawk, I did take a warm bath and it stopped the weird feeling in my feet. This week its been in the low 30s and I've been feeling bad but, I dealing with it and trying to be patient until my appt. next Thursday. Thank you for your suggestions.
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Old 12-13-2012, 12:32 PM   #10
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Re: Numb feet & toes curling in

I am glad your grandson is still on hold. I am paying for a safe arrival.

I am glad your feet are better. Often we have to figure out remedies which work for us- a game of hit and miss. During the summer months you might find ice water does you better. Too bad a mess of crawdads is not a cure!

Stay strong!
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