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Old 01-29-2013, 09:37 PM   #1
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need help!

Hello! I was diagnosed with MS on December 2011, and on June 2012 I started using Betaseron. I only had one attack since then, and my neurologist thinks I built antibodies to Betaseron and he wants me tested. now the thing is I have been in the States only for a year, and I have no idea how this health things work here. I have no idea where to get tested for those antibodies! Anyone please help!

 
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Old 01-30-2013, 07:28 PM   #2
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Re: need help!

I would think that your doctor would order the test & tell you where to go. Usually the doctor's office you go to or hospital nearby will do it, but only with a doctor's orders.

 
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Old 01-30-2013, 07:35 PM   #3
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Re: need help!

Hi. I also have antibodies to Interferon. Its highly unusual for you to develop them in such a short time, but it IS possible...it usually takes the body a few years to buld this up, but then again, I built up antibodies to Tysabri in only 3 infusions..
Your doctor has to order the blood work. Antibodies tests are not the usual "western blot" tests- most labs dont even know what they are drawing for- the doctor usually has to write a letter , and research it and give them the draw specifics...I just went through this for the 5th time this past summer.
Labs such as Labcorp or Quest, which are national labs - do have the capability to draw for this test, however, they usually arent familiar with the test itself and rely on the doctor to give them the info. You wont be able to walk into a blood clinic and get this without a prescription.

Talk to your doctor. Let him know that youre not sure where to go and ask what you need. Also ask him if he has ever had a patient get this done before, and where they went. I know Im the only one at my local blood drawing center who has ever had antibody tests for interferons!

Good luck to you...let us know how things work out.
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Old 01-31-2013, 08:53 AM   #4
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Re: need help!

thank you for replying guys. Well I do have the prescription, and when I was at the doctors office I didn't know that that prescription was for blood test, I thought he was giving me some pills or something. as I said I have been here for a short time and in my country you don't need prescription for blood work! and than after I left the office I have been calling and leaving multiple voicemails, but my doctor sucks, he never returns calls, and I have not been able to reach him. I need a new doctor, definitely!!!

Again thanks so much for replying! I really appreciate it!

 
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Old 01-31-2013, 11:54 AM   #5
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Re: need help!

Your doctor should send you to a lab that does the test.
I had to go to a special lab when I was tested. I am sure they have them there too.

 
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Old 01-31-2013, 11:56 AM   #6
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Re: need help!

And sorry, definitely change your doctor if you are not happy.

 
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Old 01-31-2013, 07:08 PM   #7
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Re: need help!

Angela,
Im actually from Philadelphia myself and now reside in New Jersey.....U of Penn has an awesome MS clinic which is really well respected on the East Coast- right in your back yard! If you can get into the city, you can get to U of Penn!

You might want to look into it...ask to make an appointment with one of the MS docs there- they are all good. BUT- make sure its a MS doctor. They also have Parkinson's specialists, Migrane specialist and assorted other specialists within the Neurology group.

Hope that helps..
Nikki
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