It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 02-02-2013, 12:13 PM   #16
Member
(female)
 
Join Date: Jan 2012
Location: Canada
Posts: 54
mamax3 HB User
Re: Hi all...

I was seen by an Opthamologist. He decided not to treat it at this time. Sigh. Who knows. I am in the works of getting referred to an MS specialist in London Ontario. We shall see how that goes.

 
Reply With Quote
Old 02-02-2013, 12:18 PM   #17
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,407
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Hi all...

Great update! The Opthamologist might have declined to treat it if it is already on the mend (though this is only my thought). I hope you get an MS Specialist appointment soon!
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
Sponsors Lightbulb
   
Old 02-02-2013, 12:43 PM   #18
Member
(female)
 
Join Date: Jan 2012
Location: Canada
Posts: 54
mamax3 HB User
Re: Hi all...

I really don't know why he didn't treat it, as I still have it now. Today is day 19. Lol. Doesn't surprise me around this darn place though. They brush everything off! I'm hoping for a quick appointment too. Thanks

 
Reply With Quote
Old 02-03-2013, 03:35 AM   #19
Facilitator
(female)
 
Join Date: Sep 2006
Location: USA
Posts: 8,710
MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: Hi all...

Mamax3,
Steroid treatment only works if it is used in the first few days....it may have been too late for the doctor to feel that it would respond to treatment by the time he saw you. Thats probably why he didnt treat it....Its unfortunate that you didnt or wasnt able to get in to see him sooner.

Im glad you got the referral to the MS doctor- thats going to be a good thing.

Please keep us posted on how you are doing, and just as an FYI, if you ever experience what you are going through now with your eyes, insist on being seen in the first 48 hours or take yourself to the ER....treatment given in that time frame, will restore the sight, and decrease the pain almost instantly...

Nikki
__________________
RRMS- dx 05

Last edited by MSNik; 02-03-2013 at 12:06 PM.

 
Reply With Quote
Old 02-03-2013, 08:11 PM   #20
Member
(female)
 
Join Date: Jan 2012
Location: Canada
Posts: 54
mamax3 HB User
Re: Hi all...

Help..on top of the other symptoms I'm experiencing what I'm pretty sure is vertigo. Feels so awful! Room spins even when I shut my eyes. When I try and walk feels like I'm gonna fall. I know there is nothing any of you can do. Just needed to vent. Is there anything at all that may help this subside?

 
Reply With Quote
Old 02-03-2013, 08:29 PM   #21
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,407
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Hi all...

I had vertigo last evening. I went to bed early and remained there. This morning my vertigo was less and I stayed in bed for 3-4 more hours. I am fine now. I have found bed rest or a recline in my power chair lessens the problem and closing my eyes helps too. I hope things get better for you.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
Old 02-04-2013, 05:26 AM   #22
Member
(female)
 
Join Date: Jan 2012
Location: Canada
Posts: 54
mamax3 HB User
Re: Hi all...

Pardon the tmi here, but have you ever had it bad enough to make you get sick??? Wow. That was a pleasant experience. I don't have a virus or anything either. I think the room was just spinning too much for my stomach to handle. Lol. Still have it this morning, so will be taking it easy today.

 
Reply With Quote
Old 02-04-2013, 05:32 AM   #23
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,407
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Hi all...

TMI? Nooooo Yes indeed I have had it bad enough to get sick. My first experience was so bad I had to hold the side of my bed as I felt I would roll out or get thrown out of bed. I have found that if I am in a reclining position I do better, but lying in bed on one side or the other seems to help the most. It will pass. In college I spent 2 days in bed, but any more it has been quite rare and usually 12-15 hours of bed rest is enough for me.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
Old 02-04-2013, 10:37 AM   #24
Member
(female)
 
Join Date: Jan 2012
Location: Canada
Posts: 54
mamax3 HB User
Re: Hi all...

Okay, wondering if anyone can offer some insight here. You know about the symptoms I've been having as I previously listed. I obviously have not been to the MS specialist yet, but I just picked up my MRI cd today, and this is what it said. Slight increased area of signal intensity within the high left frontal lobe associated with the Gyral surface. This is what it said. On the scan you can see an area of like white dots. I have no idea what this means, if anything at all. Anyone have any insight at all? I'm lost. The MRI was done without contrast.

 
Reply With Quote
Old 02-04-2013, 10:58 AM   #25
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,407
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Hi all...

Even a medical doctor would not be able to answer you definitively without seeing your images. An MS Specialist and a general neuro might look at the same images and come to two different conclusions too. I would encourage you to lay aside the CD and await an appointment. Many MSers want to take a peek, but without the requisite experience or something to compare, or even your own medical history, you will not get any answers with any degree of veracity. Lay it aside and indulge in a bit of self-pampering. If anything, relax away your stress and get over your current problems!
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

Last edited by MSJayhawk; 02-04-2013 at 11:02 AM. Reason: add

 
Reply With Quote
Old 02-04-2013, 11:04 AM   #26
Member
(female)
 
Join Date: Jan 2012
Location: Canada
Posts: 54
mamax3 HB User
Smile Re: Hi all...

Lol. Oh I know you can't give me a definitive answer. I just didn't know if you have personally had any MRI's that sounded like this. I picked it up to bring to my appointment, but of course I had to take a peek. I probably shouldn't have. Lol. You're right.

 
Reply With Quote
Old 02-07-2013, 12:03 PM   #27
Member
(female)
 
Join Date: Jan 2012
Location: Canada
Posts: 54
mamax3 HB User
Re: Hi all...

Okay just a question. I was having this discussion, and wanted your input. If you are exhibiting symptoms such as Optic Neuritis, numb legs/feet, pins and needles, vertigo, ect, ect and went for an MRI, assuming MS is the suspected problem, should lesions show up on the MRI when those symptoms are presenting, or would it take a bit of time for them/any to show?? Again ONLY a question, and just looking for opinions. I know every person is different, and nothing is set in stone. Just something I'm wondering at the moment. Tia.

 
Reply With Quote
Old 02-07-2013, 12:31 PM   #28
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,407
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Hi all...

It depends on the person and if all of the problems are attributable to a single lesion or many lesions or even how early the person is in their disease. You also have the variables of the MRI image itself, the competence of the MRI technicians, and who is reading the MRI.

As it would appear that you have had ON as well as other symptoms, my first inclination would be to say MS or at least lean in the direction of MS. If your doctor is following the Revised McDonald Criteria, at least two lesions must be seen before a definitive diagnosis can be made. There are many "scenarios" such as one lesion and two separate clinical presentations, etc. If your doctor is relying solely upon the MRI, keep looking for another doctor.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
Old 02-07-2013, 01:04 PM   #29
Member
(female)
 
Join Date: Jan 2012
Location: Canada
Posts: 54
mamax3 HB User
Re: Hi all...

Okay thank you. Definitley in limbo, and I expect I'll be there for a while. Lol. Hoping to get some answers soon though, but I know that takes time. A "proper" MRI was not even done, so here's hoping that the actual MS specialist will be more thorough, and either rule out MS, or diagnose if that's what it is.

 
Reply With Quote
Old 02-07-2013, 01:21 PM   #30
Facilitator
(male)
 
Join Date: Sep 2007
Location: Kansas, USA
Posts: 8,407
MSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB UserMSJayhawk HB User
Re: Hi all...

In the capable hands of an MS Specialist, I think you will arrive at the exit from Limbo Land sooner than you might realize. Many of the tests which were previously run go to the elimination of potential causes for your problems.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



MSJayhawk (995), MSNik (524), Snoopy61 (58), J-one (13), Whimpurr (13), shahila (12), JodiH (11), MS22 (11), KingBaxter (10), LasVegasgirl (8)

Site Wide Totals

teteri66 (1165), MSJayhawk (1000), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (747), sammy64 (668), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 05:20 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!