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Old 02-11-2013, 04:00 PM   #1
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Join Date: Feb 2013
Location: Louisiana
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Kasey511 HB User
Newbie with some questions!

Hi everyone! I am a 32-yr old woman who for about a month has been havin tingling in my arm and buttocks when I look down but only when I am sitting. I had an MRI with and without contrast today as the dr thought I had possible a slipped disc in my neck pinching. That wasn't the case. There were two lighter spots in the cervical MRI that he made him think I may possibly have MS. I am scheduled to have an MRI of my brain and to see a neuro in the next couple days. I am going nuts with the possibility of having MS as I know no one who has it that I can talk to about their life and how it has affected them. I have a 6-yr old daughter and a husband who I love dearly and don't want this to change our lives greatly. Does anyone have any advice they can give me if the drs suspicion is right? Let me say this is the absolute first trouble I have experienced ever with this sort of symptoms. Is ms debilitating and how does it affect your life and the things you an and can't do? What kind of treatments are there for this? And has anyone ever had this be a possibility to find it was nothing at all? I'm sorry it's so many questions but like I said I have no one to ask!!! This looked like a great place to start so I figured it wouldn't hurt to ask!!!
Thanks so much
Kasey

 
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Old 02-11-2013, 04:45 PM   #2
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Location: Kansas, USA
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Re: Newbie with some questions!

Welcome.

Two spots might be present, but this does not mean MS. The fact is that there is no specific test for MS and your worrying, on its own, can cause symptoms to present which can be like MS.

If MS is being considered, take the time to see an MS Specialist. You have a couple down your way and they should be sought out.

MS is not fatal. If you have MS, you might find that a few adjustments need to be made in your life, but life goes on. I have been living with MS for over 35 years.

I would encourage you to lay aside your fears and anxiety and be patient as you run the gauntlet of tests. Many tests will need to be run, but none of them can specifically tell you that you have MS. Your neurologist will need to eliminate over 400 possibilities.

If you will go online to the MS Association or MS Society, you might be able to locate a group of MSers in your area with whom you can meet and talk. Some churches and synagogues might sponsor a group or they might combine the chronic disease people into a broad group.

Now that you have found us, feel free to read and lurk and ask questions which you might have. Life is still filled with blessings!!
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MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
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Old 02-12-2013, 03:21 AM   #3
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Join Date: Sep 2006
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: Newbie with some questions!

Hi Kasey.

Im sorry to hear you are going through all of this, but welcome to heathboards. Let me also assure you. life with MS is quite livable. Since my diangosis, I have been raising 3 kids, gotten married, work 60 hours a week and have gotten 3 college degrees including graduate school. 99% of the time Im burning the candle at both ends, but I survive.

Treatments? none. There are disease modifying drugs known as DMDs, they are all injectable drugs, which you give yourself, or most recently a few oral pills have been brought to market- not really proven yet, they are available. BUt they do not cure MS or get rid of symptoms, they are there to help prevent progression, because yes, MS is a progressive disease. Not everyone progresses, but many people do. No one dies from MS- its not a fatal disease, but a chronic illness.

You should seek out a MS specialist, a type of neurologist who ONLY handles MS ....most neurologists handle headaches (migranes) , strokes, Parkinsons's disease or ALS- you definately do not want to see one of those. You need a MS doctor to conduct all the testing. And, if you want more info on the tests, familiarize yourself with the McDonald Criteria.....there is no one test for MS, its a series of ruling out other things which are much like MS.

Also, for the record, most radiologists do not know what they are looking at when they see "two light spots" on a film. Those could be from migranes, prior infection or head trauma. Dont allow yourself to jump to conclusions.

Let us know what happens and know that we are here if you need us.

Nikki
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