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Old 03-23-2013, 05:46 PM   #16
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Re: MS Symptoms?

friendly21,

My gut says that you are experiencing problems, but due to your Vitamin D deficiency and stoppage and restart of Zoloft, I do not know. The one thing I do know is that the only way to alleviate your concerns is to see an MS Specialist rather than a neurologist. If you did not have the past medical concerns, then I might be more inclined to think in the direction of MS.

BTW, I would make sure that you revisit your history of Lyme testing with your doctor.
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Last edited by MSJayhawk; 03-23-2013 at 05:49 PM. Reason: add

 
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Old 03-24-2013, 05:09 AM   #17
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Re: MS Symptoms?

We are not medical professionals, so giving you a medical opinion isnt possible; however my gut tells me that you do NOT have MS....that you are experiencing all sorts of problems due to your vitamin D deficiency and from the meds you are on.....but its a non-medical opinion.

Please seek out the specialists....and the fact that the blood work went to Mayo Clinic, tells us nothing...its what kind of testing they did there which needs to be discussed. A general Western Blot blood test is not going to give 100% accurate results..so, maybe talk to your doctor about this and get more info on it as well. You can get more info on what to ask about from the good people on the Lyme board here on Healthboards.

I do hope you feel better soon.
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Old 04-05-2013, 09:57 AM   #18
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Re: MS Symptoms?

Got the results back from the MRI of my brain with and without contrast. Everything came back normal. Do you think I am in the clear I am still experiencing the persistent fatigue and some occasional nerve burning sensations on my thighs near my knee when its cold/windy/pants constricting. Neuro says its not MS, will have an EMG on tuesday.

 
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Old 04-05-2013, 10:03 AM   #19
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Re: MS Symptoms?

Quote:
Originally Posted by friendly21 View Post
Got the results back from the MRI of my brain with and without contrast. Everything came back normal. Do you think I am in the clear I am still experiencing the persistent fatigue and some occasional nerve burning sensations on my thighs near my knee when its cold/windy/pants constricting. Neuro says its not MS, will have an EMG on tuesday.
Thanks for sharing your update!!

Stick with the process. If the neuro says it is not MS, they should be able to provide you with a diagnosis. What you need is a clear, definitive diagnosis. This will allow you to know what you have and what you need to do.

Are you in the clear? Until you have a diagnosis, you will not be "in the clear".
Stick with the process and you should soon obtain a proper diagnosis.
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Old 04-05-2013, 04:44 PM   #20
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Re: MS Symptoms?

Hi Friendly,
Im glad to hear that they dont think you have MS- and that my gut was right!

Fibromyalgia is a distinct possibilty of a dx for you..it would explain the nerve pain...the EMG will tell what is going on with the nerve...let us know how that goes? I think you are in the clear, as far as MS goes...but whats causing your pain still needs to be determined.

Let us know what you find out.

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Old 04-12-2013, 12:31 PM   #21
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Re: MS Symptoms?

The EMG and my neuro is still pretty confused as to whats going on. A couple other symptoms I've noticed are muscle twitches all over my body - sometimes in my legs, arms, and under my eyes. My hands have also been trembling can really tell when I'm holding something like a pen.

Any other thoughts?
Anxiety the culprit maybe?

 
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Old 04-12-2013, 12:37 PM   #22
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Re: MS Symptoms?

Quote:
Originally Posted by friendly21 View Post
The EMG and my neuro is still pretty confused as to whats going on. A couple other symptoms I've noticed are muscle twitches all over my body - sometimes in my legs, arms, and under my eyes. My hands have also been trembling can really tell when I'm holding something like a pen.

Any other thoughts?
Anxiety the culprit maybe?
Your Vitamin D was quite low. Once the levels are rebuilt to a healthy level, you need to allow time for symptoms reverse. Anxiety could be another problem which manifest through your troubles with Vitamin D deficiency. You might want to ask your doctor to evaluate you for anxiety or to send you to someone who can ascertain whether anxiety might be playing a role.
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Old 04-12-2013, 12:38 PM   #23
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Re: MS Symptoms?

Anxiety can absolutely be the culprit! When your body is stressed, things like muscle twitches are extremely common. Another thing that could be very simple is a pinched nerve...have they considered this? Especially in your neck or shoulder area...

Hang in there. Try to relax and let this go....the news is good and for now, thats what you should be celebrating, not dwelling on anything else..keep a positive outlook ..

Try getting some exercise- even if its only stretching- get your body to start circulating some blood flow...and see if that doesnt help!

I hope your feeling better..
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Old 04-12-2013, 12:40 PM   #24
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Re: MS Symptoms?

Just wanted to say thanks to both Jayhawk and Nik you guys have been great.

 
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Old 04-12-2013, 12:44 PM   #25
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Re: MS Symptoms?

Youre doing pretty darned well yourself!! Be proud of yourself...you are handling this very well overall..

We are here if you need us....and your welcome!
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Old 04-12-2013, 12:51 PM   #26
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Re: MS Symptoms?

Quote:
Originally Posted by friendly21 View Post
Just wanted to say thanks to both Jayhawk and Nik you guys have been great.
No worries, you need not feel you are alone and the experiences you are having and sharing can benefit many others.
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Old 04-18-2013, 01:58 PM   #27
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Re: MS Symptoms?

Got the results from my ANA test today, it was positive 1:80. Not sure what the pattern was but my doctor said this is likely a false positive since its such a low titer and wanted me to get some more blood taken.

Any relationship with MS and positive ANA tests?

 
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Old 04-18-2013, 08:50 PM   #28
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Re: MS Symptoms?

Friendly21,

The short answer is maybe....

A positive ANA is not a test for MS (there are no specific tests for MS).

A positive ANA can be an indicator of:
• Drug-induced lupus
• Other connective tissue diseases, such as scleroderma and rheumatoid arthritis
• Reaction to certain drugs Some blood pressure lowering drugs and certain anti-seizure medications may trigger antinuclear antibody formation as well.
• Viral illnesses, such as infectious mononucleosis
• Chronic infectious diseases, such as hepatitis and malaria
• Other autoimmune diseases, including thyroid problems and multiple sclerosis (since it is an autoimmune disease).

I think that the best answer is that the positive ANA helps your doctor to narrow his area for investigation.
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Old 06-04-2013, 07:59 AM   #29
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Re: MS Symptoms?

Haven't been on here in a while, the fatigue is not as bad as it was and I do feel like the burning is not as severe but still there.

The only other symptoms I now have are sensitivity to cold seems like my body has a hard time regulating itself when air is blowing on me, burning around my inner and outer thighs, and constant yawning episodes. Not sure if these symptoms are indicative of anything.

The MRIs of my brain, cspine, tspine were with/without contrast on a 1.5T machine. Is this sufficient? I worry that the lesions are there but just not seen yet.

Only other info was that my 2 ANA tests were 1:80 and 1:320 homogenous.

My neuro doesnt believe this is MS but I am not so sure.

 
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Old 06-04-2013, 08:23 AM   #30
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Re: MS Symptoms?

friendly21,

As long as your neuro is an MS Specialist, the MRI machine type is less important tahn the doctor's specialty and experience. If your images have been read by an MS Specialist and are clear, then officially the doctor cannot diagnose MS because the Revised McDonald Criteria require 2 lesions in addition to other criteria being met.

Early stages of MS can miss lesions or the lesions may yet be insignificant to see. You might need another MRI in 6-12 months depending on your doctor. An MRI cannot confirm or deny MS as there are no specific tests to indicate MS.
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