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Old 03-20-2013, 07:20 PM   #1
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Unhappy What a crushing day!

You guys this is crazy. I get all ready for my MS Specialist appt tomorrow. I have collected all the info I could think of and written down everything I could muster. I call VA to make sure they had faxed over record and they say hold on your going to Duke. Your doctor wrote a request for the local hospital. I said no we spoke of this on the phone and she is the one who gave me the suggestion of Duke. Well sorry this is what she wrote so you need to cancel that appt, and make an appt at the local hospital. I said I am sorry but no. Their appts are out to August and they don't like seeing patients unless they are confirmed MS patients. He says oh. Well give me their number I'll call. This was at 830am and I never heard back. Well I told my husband and he lost it. He just said forget it I don't care what we don't pay your on that train tomorrow and we'll pay for it. I need you healthy. So here is to a 6 hour train ride total and hoping they'll still see me. I was so excited but now I'm feeling defeated again and I haven't even gotten there.

 
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Old 03-20-2013, 07:55 PM   #2
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: What a crushing day!

MSzee,
Thats crazy! And, Im sorry, but I dont know if I would get on that train unless you confirmed that Duke is expecting you. A six hour train ride seems like a very long ride if you arent 100% positive that you have an appointment.

As for them sending you to a local hospital- if thats what the referral or the receptionist is holding in her hand; it sounds alot more plausible that this is what we scheduled. Do you have anyway of confirming what it is the doctor wants done?

i wonder if, even if you called NOW, as late as it is if you could get a call back from the doctor? He would be able to tell you if the appointment was made for Duke or the local hospital. I wouldnt assume anything at this point. IF it was YOU who made the appointment at Duke,, do you have everything with you that they were supposed to fax over? If not, they wont be able to see you.....

I am really sorry you are going thru all this. Its NOT what you need. Think about calling the doctor- he has to have an answering service that can patch a message through to him- maybe you can get a call back.

Nikki
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Old 03-20-2013, 08:24 PM   #3
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Re: What a crushing day!

mszee,

Isn't it lovely to have to deal with the government medicine?

I certainly hope you can get things to work out. I will keep you in my prayers.

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MS diagnosed since October 3, 1982
MS onset circa 1977
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Old 03-20-2013, 08:51 PM   #4
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Re: What a crushing day!

MSNik I made the appt at Duke myself using VA as my referral but they never sent anything over. The young lady just said make sure you bring everything after I gave her the authorization number. I forgot to say that around 3pm I called the civilian (haha yes civilian) neuro I was seeing and told the receptionist that I had an appt at Duke that VA did the flip-a-roo on me and I needed a referral as a self pay. So she said she would see if they dr would approve them calling it in. He was the one that originally wanted me to go to Duke last year. So I am hoping he bit the bullet. I know I have an appt I just don't want them to give me an issue about no we can't see you because VA isn't paying anymore so no. I have had that happen even when I requested to pay myself. Some dumb office rule about if there is insurance they have to bill it. I'm standing there arguing that VA is not insurance but a case by case grant so to speak if it's non service connected. Oh the horrors of not having insurance. I never knew that because that not working would be like this.

 
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Old 03-20-2013, 09:45 PM   #5
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Re: What a crushing day!

mszee,

With a little bit of background research you might find that it well may be that you developed the MS while in service and technically it could be service connected. My MS showed that I had developed MS prior to service. You might be able to get assistance in dating your MS by working closely with the neuro. While the forensic look may not be infallible, you might discover that you have had your problem for some time. Any way, food for thought!

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MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
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Old 03-21-2013, 04:08 AM   #6
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Re: What a crushing day!

Mszee,
well, thanks for the additional info. At least you are sure you have an appointment. If you can afford to pay out of pocket- then get on the train!

Good luck to you..let us know how you are and how it goes....youll be in my thoughts today.

Nikki
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Old 03-21-2013, 05:02 AM   #7
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Re: What a crushing day!

Sorry MSNik this brain works at inconsistent speeds hahaha. MSJayhawk my civilian neuro said the same thing. On the train and in pain. Rhymes, huh? Today is not a good day for walking. it's amazing how many people don't mind asking you why you're on a walker. I'm so nervous and I think that stressing about this has made the episode I was already going through worse. I will let you all know how I made out later. Thanks so much for the encouragement.

 
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Old 03-21-2013, 09:31 AM   #8
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Re: What a crushing day!

mszee,

Be of good courage. There are walkers in many colors now. I am no way near fast any more, but I like the look of a cane with ghost flames! I had a walker which was purple, but I gave it to another who had a greater need. Maybe a USMC logo! I did not use a walker very long because it was cumbersome for me to maneuver. I used forearm crutches which really helped me. Nowadays a cane and my service dog do me well.

If your civilian neuro knows the VA, I am sure they can be of great help to you.
__________________
MS diagnosed since October 3, 1982
MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
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