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Old 04-23-2013, 08:00 AM   #1
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Lolo1977 HB User
Question Many odd symptoms...MS?

Hello everyone,

I realize no one can diagnose MS here but hopefully can offer me some much needed insight

About a month ago, I started to have bad dizziness to the point where it felt like vertigo and after it persisted a week, I went to doc. He said I had a little fluid in my ear and a sinus infection and I was presrcribed antibiotics. After several days I was still dizzy but attempted other things such as epley maneuver and seeing my chiro for the neck tension. I had a bad reaction to some Afrin nasal spray in which my heart was racing and I felt like I was going to pass out. My body also felt like it had gone numb especially in my arms ans that is when the problem started.

After that, I was ok but actually wondered if I had a stroke since the heaviness in my arma persisted into the next day. It felt like I couldnt lift my arms and felt funny to write. Fast forward another day and I was feeling better until I went to get ready for a night out with my girlfriends and was attempting to do my hair/makeup when I lost dexterity in my right hand. I could barely pick up my makeup. I was very scared. At dinner that evening, using my fork was also difficult.

That feeling went away the next day although a strange feeling in both hands persisted on occasion; a funny feeling especially when picking things up. I went to see the chiro thinking maybe it was a pinched nerve? He said it could be CNS related. I had some head and neck tension but no pain so a pinched nerve was unlikely. A couple days later, my foot and leg below the knee was numb (pins and needles this time) and then progressed until the entire right side of my body went numb. I saw my MD and he did suggest MS immediately. However he wantes to rule out anxiety first and put me on xanax. I have been on xanax only at night now for about 2 weeks and still have pins and needles in random areas. One night it will be my big toe and the next, both of my hands up to my elbows will be tingling. I m

 
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Old 04-23-2013, 08:07 AM   #2
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Lolo1977 HB User
Re: Many odd symptoms...MS?

Sorry for the typos...posting on my phone is proving difficult. You should alao know that I am a 35 year old woman and in hindsight have also had previous issues such as: dropping things, occassional buckling of lower leg at knee, extreme fatigue for months now. One other scary episode about 6 months ago where my left eye unexpectedly turned inward but only lasted several seconds..

Should I request a MRI at this point or take more of a wait and see approach?

 
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Old 04-23-2013, 10:10 AM   #3
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Re: Many odd symptoms...MS?

Lolo,

Welcome.

I have had 2 occasions when I had dizziness/vertigo where it was not attributed to my MS. Both times it was due in part to an infection which cause fluid to build and kept me off kilter for a week or so. Nasal sprays should be treated carefully as they can become addictive and long term use can cause tissue damage in the nasal cavity.

While your doctor mentioned MS, there are over 400 diseases which can mimic MS and these would have to be eliminated before a diagnosis could ever be achieved.

The good news is that many specific tests will eliminate many of these mimicries. It could be something as "simple" as Vitamin D deficiency. A blood work up will eliminate or identify many possible causes.

If you are having anxiety, this is another MS mimicry OR it can be a subset of MS. Either way, anxiety can be debilitating if it cannot be controlled.

If you have MS (IF IF IF ), I would encourage you to avoid chiropractic care as this can cause problems within the MSer. The treatments can cause symptoms to worsen or to present. Massage is also something to be avoided for the same reason. If you have MS, your myelin sheath is replaced with scar tissue which is not as pliable as the original myelin sheath. This may be one of the factors which can cause problems when seeking chiropractic care or massage therapy. Stretching and low impact exercise provide the greatest benefit.

I would encourage you to have the initial tests run for blood borne problems. If you doctor cannot find anything outside of your CNS, then ask to see an MS Specialist to start your next phase. If the MS Specialist finds something non-MS, then you would be sent to another specialist.

I am glad you found us. I realize you are in a scary place, but you are not alone. Over the years I have bid good-bye to some who had thought MS, but who are now "back to normal". I certainly would be happy to see you go "back to normal", but if you indeed have MS, then you would be most welcome also. In the meanwhile, as this part of life's journey takes you to our area, please feel free to hang out and maybe we can help your journey be a bit easier.

Lastly, I would encourage you to keep a symptom journal. This can help your doctor to see your "real time" symptoms. I try to keep a note of mine to help me discover my triggers. I note what I ate, the temperature, etc. If there is pain, I also rate my pain on a scale of 1 - 10 (10 being REALLY bad).

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MS onset circa 1977
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Old 04-23-2013, 02:25 PM   #4
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Lolo1977 HB User
Re: Many odd symptoms...MS?

thank you for your kind words, Jayhawk! I sincerely appreciate the support!

When I went to see my MD, he only ever mentioned "getting an MRI to rule out MS" when this came on. I am unsure of why he would not first rule out the vitamin deficiency, and such, first. He only said if my symptoms persisted I would need a MRI.

Although I have anxious tendencies, I can say with every fiber of my being that losing the dexterity in my hand was NOT anxiety related! I was actually slightly offended when he suggested anxiety as the cause of these symptoms. a lot of things I would never have even given second thought to unless he had mentioned MS, and only that. In hindsight I have made a lot of excuses for related symptoms.

The only other thing I forgot to mention on my earlier posts was twitching problems...tremors? a few months ago, I had one on my arm that lasted well over a week. now I have one on my left eyelid that has been there weeks. at rest, I sometimes notice my fingers will twitch as well. just something I thought I would mention.

 
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Old 04-23-2013, 06:54 PM   #5
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Re: Many odd symptoms...MS?

Lolo,

Thanks for the additional information. You should know that the MRI CANNOT rule MS in or out as a diagnosis. If you have a doctor ruling on MS based upon an MRI, run away as quickly as you can because the doctor is incorrect in such a method. MS has no specific test. I think you would best be served if you get your blood work done and then make an appointment with an MS Specialist. Any MRI should be with and without contrast and include your head and c-spine at a minimum.

I was living in SoCal when my MS worsened. In the SoCal area the MS Specialist seemed to have trouble providing a diagnosis. You might need to be a squeaky wheel to make them move forward.
__________________
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MS onset circa 1977
Proud to be MED FREE!
Eternally blessed and eternally optimistic!<><

 
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