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Old 05-26-2013, 08:56 PM   #1
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car wreck - symptoms?

My Dx is demyelinating disease and dysautonomia. In the diagnostic phase- still.

My husband, two kids and I t-boned an old lady who drove straight in front of us going about 30. Thankfully not faster. And everyone was fine, except me. My body must have freaked out. Bruising of the collarbone and chest and hip bone. Expected. ER visit, many X-rays, thankfully nothing broke.

My question or need suggestions. It's like all the symptoms I have ever had over the last year and a half magnified! Very quickly! A few here I will mention. Within 30 minutes my right side of my face, tongue, and throat was so numb it felt swollen but wasn't but made me slur speech. My entire left arm went tingly numb. (my right hand/fingers have been constantly numb since this started yr and a half ago but only left arm slightly for a couple weeks)This was at lunch today, and both have lessoned but still there. my face is still numb and like I swallowed oragel. I know stress, etc can cause stuff to happen but can I do anything?

Obviously this was stressful but I feel like my reaction was so much worse than anyone else's although I realize the same wreck can kill someone while the another person walks away.

Honesty moment and vent: I just wonder how much is from this prior health stuff I was already dealing with... And that ticks me off. It's like I don't know my body or its reaction to things anymore...

Last edited by raden; 05-26-2013 at 09:00 PM. Reason: whoops!

 
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Old 05-26-2013, 09:29 PM   #2
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Re: car wreck-symptoms?

Raden,

Sorry to hear of your accident. Trauma can hit you especially hard due to your illness. Sometimes a trauma can cause new symptoms to present. It is difficult to know if you felt extra injured due to your pre-existing condition. If you have not yet, I would certainly advise your MS Specialist as they would likely be interested, I think.

I hope you recover quickly. I will certainly add your current needs to my prayers.
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Old 05-27-2013, 01:48 PM   #3
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Re: car wreck-symptoms?

Raden,
im not sure how long ago you had the accident (and Im glad to hear no one was hurt seriously) but that could be a trigger for your other symptoms, OR it could be that something like a herniated disc is causing your symptoms right now. Herniations can definately cause numbness and weakness in one of your arms . The throat feeling, not usually caused by a herniation, but who knows ? If there is something pushing against a nerve, anything is possible.
Unforunately, you have two choices- go back and have your neck Cspine area MRId and see what shows up, or start over with a neuro and have them start running tests, which will also result in a Cspine MRI. It just depends, are you looking to avoid someone saying it is surgically related- or are you looking for someone to rule out that it could be MS related? An ortho doc will push you towards surgery if they find something on the scans...a neuro will push for futher testing.
I hope you get some answers soon. Its a horrible way to live. I have 3 herniated discs in my neck area, and also have MS. Its a field day trying to figure out what pain is from what- but since I have decided that surgery isnt happening, I simply live with it and take alot of motrin when it acts up! Have you tried OTC drugs such as Ibuprofin? If it helps, more than likely, its muscular in nature..
Good luck.
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Old 05-27-2013, 08:44 PM   #4
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Re: car wreck-symptoms?

Nikki, my wreck was at about 1:30 pm yesterday. I know alot of this is muscular, because I am bruised and extremely sore. And yes, ibuprofen is helping with some of that. However, I guess I was mainly venting or inquiring about the numbness, especially the face. (That had only previously happened slightly for about 2 weeks late last year I believe.) That did not change with meds. And the dr. prescribed muscle relaxers so I wouldn't spasm as much. I am not sure if thats helping because I am still in quite a bit of pain and very uncomfortable.

Right after the wreck, the facial numbness became very troubling, but I also do not know if that can be caused by an actual injury or its the stressful event causing this symptom to come back alive, so to speak. Me and my husband literally have had this conversation three or four times since yesterday. Thats what angers me is that I don't know if its the wreck, or symptoms from this "problem" I seem to be having that has freaked out, so I feel frustrated and basicly ticked off at my body that I don't know. I have never had a wreck, everyone in the ER and family say expect to be sore for up to five days... but should the wreck cause facial numbness, my arm to be totally numb, and the weakness in all my limbs to be so much more than normal (and its really being questioned-by myself- because I was the only one who was injured-although as I stated, I know that is possible). I could expect most of it from simply being in a wreck, but some of its strange.

The facial numbness, and feeling like I swallowed oragel is not pleasant and I will be calling my neuro tomorrow to see what he thinks about that one in particular. My arm is still numb but not totally like yesterday. I guess I am thinking its like when I had a massage and almost immediately felt strange and by the next day, all my prior symptoms had gotten so much worse than they had ever been is what I keep thinking with this. But man I hope its just the effects of having a wreck and not getting back into this cycle again...

As far as the two choices, I would rather my neuro tell me his opinion, or have the test ran, I certianly would not want surgery at all (my mom broke her neck years ago and had surgery- and they found it on mri- not xray). As well, the ER dr. said this wreck would NOT have an effect on a demylinating disease at all. Well, yeah, I am not saying its causing a new lesion- but I already know whatever is going on with me was completely revived after a massage, so I am a believer that a wreck could screw me up worse than that...

I just am really frustrated and decided to post to see if anyone has insight or thoughts. I appreciate your post. I will be calling my neuro in the morning to see if I may need an mri or something else or nothing???

Last edited by raden; 05-28-2013 at 12:56 AM. Reason: add

 
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Old 05-27-2013, 08:56 PM   #5
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Re: car wreck-symptoms?

Raden,

Your numbness could certainly be related to muscle inflammation which may or may not involve your nerve problems. You might need to allow your body time for the pain to go away. I remember being rear-ended and the worst pain was the day after the accident. You are still in my prayers.
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Old 05-28-2013, 02:45 AM   #6
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Re: car wreck-symptoms?

Raden
I was in a car accident in March. I was a mess immediately after, felt better 2 weeks later....and now, 2 months later, am having problems again which are all numbness and tingling- and pain in my shoulder/ neck area.

They did xrays on me post accident and CT scanned my head, looking for bleeds- since I hit my head, but thats all they did. My neuro sent me for an MRI a month later and we discovered that I had herniated discs in my neck...which is what is causing my pain. The worst part is, I already had slight herniations, now I have major ones.

Ive elected to live with it, but- it hurts! Almost all the time.

SO i understand your frustration. Right now, you are really anxious, I can hear it in your post....because there is so much inflammation in your body, there is no way anyone can tell you for sure what is and what isnt car accident related- so for now take it easy stay on the motrin- and see your doctor in ten days or so if you dont feel better. BUT try not to stress. It cant make your disease worse ..that is a fact. The only thing that might have happened is that you might need more physical care then you are aware of, but a few days isnt going to matter. Even a month wont matter. If you need additional care, her car insurance will take care of it.

Try to relax. A motor vehicle accident is scary....but more than likely youll feel fine in a few days.
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Old 06-20-2013, 09:19 AM   #7
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Re: car wreck-symptoms?

Well, thankfully I found that its not ALL because of the ongoing medical issues. I continued to have extreme pain between my shoulder blades, even after it seems almost everything else pretty much went away. So further tests conclude I have acute tear to the ligaments that hold the backbones together (I do not know medical jargon at all!). Anyway, it's whip-lash in the back instead of neck.

Question: This is at T7, can that cause numbness in the arm? I ask because the last time I went to my neuro I was having discomfort between my shoulders-not exact place- and the new symptom of numbness in the opposite arm from my normal numb one, and the neuro said that even if it was a lesion that low wouldn't cause numbness in the arms. ???

Question: The only other time my face felt funny- some degree of numb was last year, but I did not remember when the neuro ask at my last appointment if my face had ever been numb. I said no, but later read my journal and was going to mention it. But after this wreck it was completely numb, like droopy talking funny numb. It stayed that way gradually getting better over about 5-6 days. So...

The reason I didn't really think of the face thing at the time is I was thinking it was dental. I have never had problems with my teeth. A few cavities my whole life. Few pulled teeth as a teenager when I got braces, but nothing major. So I began having pain last year at some point, thinking it was coming from a previously filled cavity that was done years ago. Xrays, nothing. he said it could be a hairline crack, we could crown, whatever, but after a few weeks of nagging pain that never got too bad, it quit. When I have got my teeth cleaned the last 2 times, its like I want to have lock-jaw on that same side, and have to have her stop occasionally, the face issues now are still nagging, a few times sharp shooting pain in my jaw at the same place, but since the pain went away last time I am certainly not confident its dental enough to have a tooth crowned. usually once a tooth hurts it doesn't just go away.

The ER said that's weird my face went numb after the wreck. The neuro office said its strange, and I think so too. Any ideas or a fluke? Does it matter? Ha

 
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Old 06-20-2013, 09:49 AM   #8
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Re: car wreck-symptoms?

Could it be trigeminal neuralgia? When my TN hits it is severe stabbing pains over and over again for about 10 minutes - sometimes longer, sometimes shorter - followed by a dull and painful ache. All in all it last about half an hour. Before the sharp pains start, I get a mild ache in my teeth and get the urge to brush my teeth to stop the ache. I feel the pain through my cheek and along the upper and lower gums and it stops mid way.

I also had a crown put on bc that was supposed to stop the pain. It didn't. Then a root canal was suggested. By that point I knew better and declined further dental work - my X-rays were all clear - they couldn't figure out where the pain was coming from so they sent me to a physio for TMJ assessment. It was not TMJ and the PT knew very quickly that it was a neurological pain.

Last edited by Amanda953; 06-20-2013 at 09:51 AM.

 
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Old 06-20-2013, 11:01 AM   #9
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Re: car wreck-symptoms?

raden,

Any problems in your t-spine should be felt in your legs or at least noticed in your legs unless your nerves are "wired" differently. Arm numbness is more likely your c-spine or brain and a single lesion is all it could take.

I get "droopy face" all the time. My doctor has me smile and she can see the extent of my facial numbness outwardly.

Head trauma or any kind of physical trauma like you experienced in the accident could manifest in many forms. If you have MS and you go an play a hard impact sport, you will more than likely "feel it" afterwards if not during. MSers have lesions which are not pliable like the original insulation (myelin sheath). Scar tissue is more likely to be damaged by a hard impact such as the accident or chiropractic manipulation or some other trauma. As to your teeth, TN might be a problem, but micro fractures could also be a possibility. An oral surgeon might be needed for a consult.
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Old 06-21-2013, 10:20 PM   #10
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Re: car wreck-symptoms?

It is interesting you said it could be my nerves are wired differently. When my dentist pulled my teeth when I was 15, we found my facial nerve must be wired a little different, the bottom right was numbed just like the others but when he broke the tooth or root, however you say, to pull it out, I completely felt it starting at about my temple, he used a whole other shot but i didn't work... so he explained God made me a little different. That was sweet and he felt horrible he made me experience extreme pain.

Wow. I read some information about TN. I think I wish I hadn't and pray that's not the problem! However, I do appreciate the information, knowledge is always helpful.

Last edited by raden; 06-21-2013 at 10:24 PM.

 
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Old 06-21-2013, 10:33 PM   #11
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Re: car wreck-symptoms?

raden,

I am fortunate, I think, that I have not had TN. I have had nearly every possible symptom including audio and seizures, but not TN. I hope this is not your case.

While most of us are wired in a certain manner, it is only an "average". That is, in reading my youngest son's textbook it would show that while main branches are fairly "standard" peripherals may not be. We are all uniquely created, so I expect there is diversity in our wiring!! I think your experience with the dentist demonstrates this too, and what a blessing to have a dentist such as the one you described.

The trauma from the accident may take sometime to heal fully. My mother was hit by another driver who hydroplaned into the car she was riding. Until my mm passed, she was still recovering from that accident 3 years out. We all heal at different rates and if you have MS, while your body recovers, symptoms which can be linked to that trauma can continue. Our scar tissue is not pliable like the myelin sheath. The hard impact of the accident can re-damage the scar tissue which then can start a cascade effect and you wind up as you are..... You are in my prayers. I want to see you recover as fully as you can!
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Old 06-22-2013, 08:15 AM   #12
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Re: car wreck-symptoms?

I apologize if I startled you with the TN. What you posted sounded familiar and I jumped - I'm sorry.

Nerves certainly are interesting. My son has small 5th and 7th cranial nerves (trigeminal nerves). As a result, he has zero sensation in the left side of his face - including his eye and his mouth. I found it quite ironic that I suffer such pain in the same region as my son when he cannot feel anything there at all - I'm just telling you this to reinforce that eveyone can indeed be wired differently.

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Old 06-22-2013, 11:15 AM   #13
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Re: car wreck-symptoms?

No apology necessary! Its fine, its just amazing all the issues that people deal with and as a completely healthy person with a pretty healthy family, until a year and a half ago I absolutely had no clue! And the numerous names TN has used its even more hard to follow. Knowing all this medical stuff has helped to concrete my perspective that we have no clue what others are dealing with so don't take it so personal when you come across someone in a bad mood or acting a fool, smile and pray their day gets better.

In the literature I read on TN it seems to consistently say that IF you are going to experience that symptom that is a result of myelin destruction, such as with MS, it tends to occur early on and can be one of the first signs of a neurological problem.

The remaining question for me that didn't get cleared up is : TN is described as a series of electrical shock like or stabbing type pain that lasts seconds, minutes... what I experience is almost like my jaw will lock up, tightness, only occasionally having a stabbing pain very few times, that's when I had xrays, then that went away.

Overall its a tightness, uncomfortable feeling a lot of the time, and periods of time it went away, thus me thinking its not dental and not having dental work. As well, its the same bottom right that we found wouldn't numb so there is an EXTREME hesitation to have a crown done there when its not clear that's the problem. I didn't read anything about it being a tight feeling like my muscle has worked out and feeling like my jaw-bone is sore or anything other than the painful horribly intense episodes. Does that still sound like it could be TN? And yes, I want the truth!

 
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Old 06-22-2013, 11:25 AM   #14
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Re: car wreck-symptoms?

Also, that is interestingly ironic about you and your child's opposite issues. My son is taller and larger than normal for his age and my daughter is much smaller and weighs much less than she should for her age, one of those things if you could just meet in the middle and neither have the issue would be great. I appreciate the responses to my inquiries and information given.

 
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Old 06-22-2013, 12:01 PM   #15
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Re: car wreck-symptoms?

Raden,

TN can have varying symptoms.

Symptoms can include:
Occasional twinges of mild pain
Episodes of severe, shooting or jabbing pain that may feel like an electric shock
Spontaneous attacks of pain or attacks triggered by things such as touching the face, chewing, speaking and brushing teeth
Bouts of pain lasting from a few seconds to several seconds
Episodes of several attacks lasting days, weeks, months or longer — some people have periods when they experience no pain
Pain in areas supplied by the trigeminal nerve, including the cheek, jaw, teeth, gums, lips, or less often the eye and forehead
Pain affecting one side of your face at a time
Pain focused in one spot or spread in a wider pattern
Attacks becoming more frequent and intense over time

If you have not, I would encourage you to read the TN threads on this website because they could help clarify what you are experiencing.

I do not think that a child's size or weight will deviate them from "average" wiring of the nervous system. While the main branches are generally in place at birth, the system grows and refines itself as the body develops. The main network branches are pretty well set. The most activity is the continual growth in our brains as our brains mature and connections are formed and developed. By the time most people turn 23 years of age, the brain's processing centers are finally connected and in place.

I have a niece who is 6' 2". As a child she was small, but her pediatrician said that according to her wrist bones, she would be between 6 and 6' 5". When she hit high school she shot up like a bean pole. I imagine that a whole lot of nerves were being added to keep up with her body's growth!! The one thing we can say is that we are all human
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