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Does anyone have bethlem myopathy?


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Old 04-21-2017, 12:20 AM   #1
MrsG92
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Does anyone have bethlem myopathy?

Hi, I'm new to the forum and am looking to speak with other people with bethlem myopathy. My mum, brother and I have it but it would be nice to speak to someone not so close to home!
My husband and I are currently thinking about children and it terrifies me (not the baby part). Im worried about passing on the disease and how my child could be affected - if anyone has any experience with this or bethlem in general I would love to chat!
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Old 06-17-2017, 09:25 PM   #2
Michael037
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Wink Re: Does anyone have bethlem myopathy?

I just got diagnosed with bethlem myopathy a few weeks ago.

Anyway, as far as your question is concerned, I inherited this from my father. I have a brother and he has it as well. My dad said that when him and my mom were looking into getting pregnant that Dr's were saying that it would be a 50/50 chance. It turned out to be 100% in me and my brothers case. I have read that if you have a really mild case of it that it could be the 50/50 situation more likely. I have decided not to have kids naturally. Me and my girl are likely interested in adopting. If you have any other questions you can ask whatever you want.

-Mike

Last edited by Administrator; 06-17-2017 at 09:57 PM.

 
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