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Does anyone have bethlem myopathy?

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Old 04-21-2017, 12:20 AM   #1
Join Date: Apr 2017
Location: UK
Posts: 1
MrsG92 HB User
Does anyone have bethlem myopathy?

Hi, I'm new to the forum and am looking to speak with other people with bethlem myopathy. My mum, brother and I have it but it would be nice to speak to someone not so close to home!
My husband and I are currently thinking about children and it terrifies me (not the baby part). Im worried about passing on the disease and how my child could be affected - if anyone has any experience with this or bethlem in general I would love to chat!

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