7 wasted yrs - Muscular Dystrophy Message Board

HASTI · 05-08-2004, 05:41 AM

Hello All, I Am New To This Board, I Will Keep It Short Although Its Been A Very Long 7 Yrs For All The Family.
My Little Girl Has Been Neglected By The Hospital , And Its All Come To Light Now, After Just One Visit To The Physio To Be Measured Up For A Wheelchair, She Found That My 7yr Old Daughter, Has Floppy Muscles, No Reflexes, Poor Knee Positioning, Scolliosis, And Her Left Side Has Dropped, And She Doesnt Use It Properly. I Told Her My Girl Falls Often Cannot Read Write, And Has Poor Memory, She Sleeps So Much, She Cannot Run Around Neither Ride A Bike,, . She Has Finaly Seen A Neurologist And Awaiting A M.r.i. Also A Spine X.ray A Muscle Biopsy And A Series Of Blood Tests. Is There Anyone Out There Please That Can Relate To These Symptoms, I Have Been Adviced To Expect To Hear That She May Have Muscular Dystrophy Or Cerebal Palsey, I Would Be Very Gratefull Please For Any Opinions On This. Many Thanks

suzi47cmt · 05-09-2004, 02:34 AM

Hi Hasti,
I am not in the same boat as you, but do know someone who is, and who has gone through what you are going through with your daughter. He is a very close friend, so perhaps I can have him come on and post to this board, and see if he can give you some support.

Good luck, and most of all DO NOT GIVE UP. She needs you now, and I can see you are all there for her. Muscular dystrophy is not the end of the world, I hope that if it has to be one or the other of the two, that it would be muscular dystrophy. (only because I know more about it versus CP)

Again, I will try to find out if he can post here and at least give you some moral support.

Take care, and God bless you all.

Suzi

HASTI · 05-09-2004, 02:58 PM

Hello Suzi, Thank You So Much For Replying To Me, And Thanks For Your Help, It Would Be Great If Your Friend Could Give Me Some Moral Support, And Would Luv To Hear From You Soon, Many Thanks, Lynne

island queen · 05-09-2004, 04:03 PM

Quote:

Originally Posted by HASTI

Hello All, I Am New To This Board, I Will Keep It Short Although Its Been A Very Long 7 Yrs For All The Family.
My Little Girl Has Been Neglected By The Hospital , And Its All Come To Light Now, After Just One Visit To The Physio To Be Measured Up For A Wheelchair, She Found That My 7yr Old Daughter, Has Floppy Muscles, No Reflexes, Poor Knee Positioning, Scolliosis, And Her Left Side Has Dropped, And She Doesnt Use It Properly. I Told Her My Girl Falls Often Cannot Read Write, And Has Poor Memory, She Sleeps So Much, She Cannot Run Around Neither Ride A Bike,, . She Has Finaly Seen A Neurologist And Awaiting A M.r.i. Also A Spine X.ray A Muscle Biopsy And A Series Of Blood Tests. Is There Anyone Out There Please That Can Relate To These Symptoms, I Have Been Adviced To Expect To Hear That She May Have Muscular Dystrophy Or Cerebal Palsey, I Would Be Very Gratefull Please For Any Opinions On This. Many Thanks

Has anyone ever had Nasal polyps? Please reply

HASTI · 05-10-2004, 04:49 AM

hello to island queen, this is lynne here, (HASTI) i received mail to tell me that you had replied to my thread, but i cannot seem to find it, if you can, would you please try again or maybe advice me what to do , as i am new to all this, many thanks,