It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Muscular Dystrophy Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 11-02-2005, 11:59 PM   #1
Senior Member
(female)
 
Join Date: Oct 2002
Posts: 123
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Shababy HB User
Post What makes my daughter weak in the legs?

My daughter now 16, since birth, has had many problems. I sent her records to an Dr. for MD once and she said look in another direction. My daughter hadn't told me about her weakness in her knees and legs. She has always had strength issues in her hands and arms though, hard time getting up off the ground, soft couch, etc. Now my daughter tells me she has had weakness all along. She is slow at telling my symptoms because she has NVLD(Autism spectrum). She has a pos speckled ANA, hyperandrogen syndrome, polycystic ovarian disease which caused her 25% too much male hormones, now she has to be watched for diabetis, tumors and cancer of the
adrenal glands. She has spina bifida OCCULTA, mild scoliosis, slip disk(spondlyothentisis), bilateral cavas feet, tight heal cords and tight hamstrings, heart murmur has been heard on 2 occasions, sever neurological problems, awareness, common sense, judgement, expressive, receptive problems, ADD, auditory processing disorder, etc. She has a twitching inside her body that makes her limbs move by themselves. Doctors think the twitching and involantary movement are in her head, just like they did for years with her pain. We've been told she could be developing Fibromylasia, Lupus or some other connective tissue disorder. I'm at a loss. Now what? Have had MRIs of spine and brain but not the brain in a few years. She's had urodynamic study, has seen tons of docs. She also has TMJ, and one side of the body quite growing after birth. Should I call the MD place again or what?

 
Sponsors Lightbulb
   
Old 11-10-2005, 03:56 PM   #2
Senior Veteran
(male)
 
michigani's Avatar
 
Join Date: Dec 2004
Posts: 534
Hugs: 17
Hugged 7 Times in 5 Posts
Thanks: 9
Thanked 15 Times in 14 Posts
My Mood: Fine
michigani HB Usermichigani HB Usermichigani HB Usermichigani HB Usermichigani HB User
Re: What makes my daughter weak in the legs?

Dear Shababy,

I wish I had a concrete answer for you. I can only offer you a bit of advice. If you have not already tried, contact your local MDA office. They will set you up with an MDA doctor who is an expert at Muscular Dystrophy. It sounds like your daughter is suffering from many things some of which are typical MD syptoms, like the weakness and tight muscles, some which are not typical. That's not to say she couldn't have more than one illness. (As an MD patient myself, I know that I am not immune to other health problems any more than anybody else). There are a few muscular dystrophies that can cause heart and mental problems as well. I'm not allowed to give you a link but check MDA's website. They list all the symptoms for the various MD's.

I wish your daughter the best and I hope you get some answers.
God Bless.

Mark

Last edited by michigani; 11-10-2005 at 04:01 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
What the heck is wrong with me? takenbylovely Open to All Other Health Topics 3 07-20-2011 08:59 PM
What type of dr do you see? armyofone0508 Muscular Dystrophy 2 04-20-2010 10:33 AM
what are the chances i can repair the damage i have done?? pucca_chick Healthy Lifestyle 2 05-22-2009 03:45 PM
What got 'destroyed' in you? Melk86 Addison's Disease 8 03-30-2008 06:42 PM
Any ideas out there on what I'm up against? rtnnebraska Neuromuscular Diseases 6 07-04-2005 11:43 AM
What to do? Kadian 4 years.... Otter66 Pain Management 9 04-28-2005 01:58 PM
What am I up against?? rtnnebraska Amyotrophic Lateral Sclerosis (ALS) 4 04-03-2005 11:13 AM
What does this sound like? marti_girl Personality Disorder 7 11-09-2004 09:53 AM
what a V.A.T.S surgery is on the lungs,and my surgery with it. sparkels1228 Cancer: Lung 0 06-17-2003 08:03 PM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off











Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Muscular Dystrophy

    michigani (15), mandy37 (11), Dreaman (10), Greetings (7), yncruzr (6), NP74 (4), Yogaman (2), mintgan (1), sarahJ74 (1), Myoshi patient (1)

    Site Wide Totals

    thanbey (581), janewhite1 (528), BlueSkies14 (511), SpineAZ (484), DGabriel10 (465), mscat40 (419), tetonteri66 (419), jennybyc (402), sammy64 (390), jgrangran (359)

    All times are GMT -7. The time now is 04:34 AM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.