Hey everyone, I'm sure there's a thread on here with this exact question, but here goes again. How do you deal with the way certain people respond when you tell them that you or your child has MD? Some people seem so honest and concerned about your situation, while others blow it off like it's no big deal.
I know that until you are faced with this type of situation, you do not know even half of what's going on with a person's body. I have even had a few people at my church make me feel like I have no faith, they tell me that I'm worrying for no reason. I have always behaved with my responses to them, but what I would really like to say is, "I hope you never have to walk in my or my sons shoes" I truly don't want them to ever go through this, but if they do, they will really know how hurtful it is for someone to say things like that. And sometimes it seems that no matter how many times I tell someone, even family members, what MD is about, they still act like it's nothing and say things like "Maybe he'll out grow it" I always say the same thing, sorry, it's not something he's going to out grow, it's just gonna get worse, but still they don't understand!!! Some people even say, Oh, he's walking so much better today. I'll admit, some days are better than others, but waddling like a duck and falling and barely being able to get up are not signs of walking better
But I am learning to just ignore these type of people.
Sorry, I guess I just needed to vent to some people who TRULY understand what I'm talking about.
Any advise would greatly be appreciated