weak and sore legs - Muscular Dystrophy Message Board

casinogal · 09-23-2008, 05:06 PM

I am still not diagnosed. Neurologist told me it was LGMD but he needed more blood tests to confirm. Got a call yesterday and the tests are not conclusive, so I am going to see another neurologist in a different city for a muscle biopsy. He is sending me to one that does needle biopsy as opposed to a more invasive muscle biopsy. I notice a big change since August, but mostly in one leg. Did anyone experience more problems with one leg in the beginning. Very hard to take all this in, isn't it. I suppose I need answers, but keep hoping he will say all I need is to strengthen my muscles.

Madalot · 09-24-2008, 08:28 AM

Yes, I definitely have noticed a bigger problem in one leg over the other. I use my left leg (the stronger one) for any steps I can't avoid. If I try to get up a step using my right leg, it just ain't happening!! I guess because I put so much strain on my good leg, it gets sore from overuse!

I guess my left side is stronger than my right because my hands are the same way. I cannot open a bottle or jar with my right hand. If I am able to open it, my left hand is the one I use (frequently I just can't get them open -- my kids do it for me). I can't tell you how many times I've been home by myself and in tears because I couldn't open the laundry detergent or a jar of sauce!! I've learned to plan ahead and ask someone to open something ahead of time in case I will be home alone!!

I feel your pain and your frustration. In my particular situation, the problems have been with me most of my life, but since I didn't realize at the time that anything was wrong, I just learned to adapt. My former neurologist said that I have been adapting all my life, so much, that I don't even realize how differently I do things!

Keep the faith and keep posting. We're all here for you!!

Kathy

casinogal · 09-24-2008, 05:32 PM

Thanks Kathy. It is helpful to know how it came on other people. Like you, I have had weakness for some time, especially with opening things. The only way I can open anything is to tap it first. Otherwise, I have to get someone to help. This has been going on for years, but I thought I just didn't have a lot of muscle strength. My right leg is stronger, but I know I am putting too much stress on it going up stairs. Just hope it holds out. I use an elastic bandage on my left knee and that helps. Without that, it hurts.

michigani · 09-24-2008, 05:53 PM

casinogal,

my legs are so weak it's ridiculous. But I'm truly thankful that they still get me around (others have it much worse). Even though they don't push me out of a chair. My left leg is the stronger. Funny, it used to be the right. It's hard to really say but I'd put my left leg at 10% it's old strength and the right at about 7-8%. My quadriceps are shot! They ache often, but I believe it's because they are just being overworked. I don't think the MD actually hurts.

Mark

Snickers60 · 10-22-2008, 08:12 AM

a good way to open things; jars etc. is to turn it upside down and let it rest on it's top for a bit 10-30 minutes. Most times, it opens like a snap. Its an air thingy.

Hope this little tip blesses you as it has me.