my fiance has reflex neurovascular dystrophy and it effects her muscles so i think i can post here...
anyway, she has it, and i dont know what to do for her. i give her massages to ease the pain as much as possible, keep her rested and as stress-free as possible, and everything else i can do. what else can i do, and is there anything professional other than PT that can help her? it kills me to see her in so much pain.
matt, "Hi". I'm sorry to hear about your fiance. I really dont know anything about rnd. It sounds like shes lucky to have you. If you haven't already, you might want to share this board with her. I have LGMD and apprechiate this board sooooooooo much. When I first started ready these posts, I felt "OMG, these people are living my life". I felt so alone and here, I can read and share. Maybe you can go to her next Dr. appointment and ask if there is more you can do, but I'm sure just being there for for means more then you know. MY best to you both!