I got my cpk total done a few days back,and it came 7335,where as normal is jus 25-191.I feel weakness in legs, and am not able to jog, run or climb up stairs.I got my CT scan done too, it shows fat accumulation in legs.My MRI and other tests are perfect.
I dont have any other complaints,according to my search my symptoms are similar to Becker's muscular dystrophy ,but this is a disease only affecting male! but im a 21yr female..
First, I'm sorry this is happening to you. I am a 48 year old male who has had MD since 39 years old. I know that going through the process of suspicion, testing and diagnosis can be frightening and depressing. I've lived through it.
That said, I'm going to offer a few leads for you. Most adults with blood CKs that high have LGMD or Limb-girdle type Muscular Dystrophy. There are about 20 types of Limb-Girdle MD and over 70 types of MD total. LGMD has a classic symptom of weak upper legs, torso and shoulders or any one of these by themselves. As the muscles shrink the space gets filled with fat.
Most of us share the same similar story. We were pretty normal kids but couldn't keep up with our friends. The slowest in gym class. Stuff like that. Then in adult hood we started experiencing trouble getting out of sofas, chairs and climbing stairs. Running starts to feel strange and difficult.
These are all tyipcal LGMD signs but could be something else. Please talk to your doctor and neurologist. Don't take my word for anything. Your local MD clinic can help a lot. They can give you an accurate diagnosis and offer care and some treatment. There is no cure at the moment but great advances are being made.
Good luck to you and post back with any questions.
Last edited by Administrator; 04-28-2009 at 02:41 AM.
I was recently diagnosed with Inclusion Body Myositis. It is similar to LGMD, with many of the same symptoms. My legs are weak, particularly in the upper legs. I was also told that fat is replacing the muscle in my legs. However, one difference is the fact that I have inclusion bodies in my muscles and vacuoles. I don't believe that occurs in LGMD. As Mark says, they are working on treatments for these diseases and some look promising. Hopefully will help us.