It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Muscular Dystrophy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 12-15-2009, 12:59 AM   #1
Member
(female)
 
Join Date: Nov 2008
Location: sacramento, ca
Posts: 59
grandma2o2girls HB User
Question Friedreich's Ataxia

Hi all. My son has Friedreich's Ataxia, one of the Muscular Dystrophies. He is 38 and was diagnosed at age 17. Does anyone have or know someone who has FA? I research the life expectancy and it says 15 yrs after symptoms start to show. He has passed the 15 yr mark. I just wanted any info anyone has that can give me some kind of answer.

Thank you so much for your time.
Darlene
A worried Mom.

 
Sponsors Lightbulb
   
Old 12-15-2009, 11:08 AM   #2
Senior Member
(female)
 
Join Date: May 2007
Location: Florida
Posts: 203
NP74 HB UserNP74 HB UserNP74 HB User
Re: Friedreich's Ataxia

Hey Darlene,

I don't know anything about that specific form of MD. A blessing and a curse when it comes to MD is that it progresses differently in all of us. What may be true to one person can be false to another. Love your son!!!. You could ask him if he will allow you to go to the next neurologist appointment with him. He may let you, and you will be able to ask the neurologist all the questions you have. (S)he may be able to offer you some peace of mind or at least clarification.

Sorry I couldn't be of more help!

P

 
Sponsors Lightbulb
   
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Ataxia??? tlhalabama Brain & Nervous System Disorders 3 05-28-2008 09:05 AM
Ataxia? bikerbabe Fibromyalgia 1 12-24-2007 01:10 PM
Cerebellar ataxia due to pneumonia kcferret Brain & Nervous System Disorders 1 07-20-2007 05:45 AM
Epilepsy & Ataxia - problems & possible solutions BAHAMAS Epilepsy 0 06-30-2007 12:41 PM
fredriechs ataxia disease/HELP Please mgd2962 Muscular Dystrophy 3 05-25-2007 11:29 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 10:13 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!