sleeping problems for ducheine boys - Muscular Dystrophy Message Board

deec · 10-28-2002, 02:11 PM

My son is 14 and has some trouble sleeping. I was wondering what other parents do. We get up several times during the night to roll and/or turn him. Any suggestions?

11-18-2002, 04:53 PM

My fiance has Duchenne Muscular Dystrophy, he is 31 and as far as I can gather, he too had this problem so his Mum brought him an electric bed similar to those you get in hospitals ( the bed is called a Super Baltimore ), he is also propped up on pillows under his arms so his shoulders are level across and his elbows slightly elevated, he sleeps on his back with no need to be rolled and just alters his bed to a comfy position, he has no movement what so ever. The same method can be used to prop up the legs I hope this advice helps your son so good luck...

tmm35 · 01-07-2003, 07:58 AM

i seen you post for duschenes muscular dystrophy did your sons ever complain about their legs hurting and did they loose weight and have bowel problems my seven year old son they have diagnosed him with cp but his orthepedic dr thinks he may also have a form of md possible duschenes he also walks with a foot drop.and has right sided weekness alot in his trunk and back area .could you tell me some of the symptoms your sons and fiance have had.tmm35

Rayman · 03-13-2003, 06:49 PM

At 14 a breathing assist device will help your son with more restfull sleep. Our son eats a bannana before bedtime or takes a potassium suppliment for better sleep when he has muscle spasms or aches.