worried about my g/f - Muscular Dystrophy Message Board

Toni · 08-03-2003, 06:39 AM

I have a question that i hope I can get some help with.

My G/F has been diagnosed with Chronic fatigue for a good few
years now.

recently her mother told her that her mothers cousins have MMD.
The reason I am here is to ask has chronic fatigue ever tuned out to
be MMD? I am asking this because my G/F presents with the
following

Her muscle strength is very very poor

Emotional upsets and stress wipe her out

She "yawns" and pulls paces and I dont think she is aware of it, as if
its involuntary

She has very little stamina and cant do anything even vaguely tiring
without a 2 hour sleep before or after

does any of this sound familiar?

I really hope someone can tell me if I'm on the right track or have it
completely wrong.

Thanks
Tone

Toni · 08-03-2003, 06:40 AM

I'm sorry, that should read "pulls faces" not paces

Toni · 08-03-2003, 07:13 AM

2 other things that I've noticed.

1 When she is tired and overstretched pysically her eyes are incredibly bloodshot and just one look at her confirms that she needs to rest, she looks so ill, her eyes look "wrong".

2 Heat helps, she books regular sessions to tan because the heat in her words "helps her muscles"

Toni

starlitgem · 08-14-2003, 01:30 PM

SHE NEEDS TO SEE A GOOD DOCTOR! Does she have insurance??

I was weak like that, and it turned out I had Myasthenia Gravis. I was diagnosed at 14 and I now take medication every 3 hours. It helps so much.

ButtMonki · 12-08-2003, 10:53 AM

Please post if she finds out what is wrong. I have the exact same symptoms (although haven't tried the heat thing) I spend all day yawning and people keep on making annoying comments. I get tired after spending just 15 mins in the garden, or walking to the bus stop, even just climbing up the stairs is an effort, I have to go and rest. I have always wanted to be fit and have tried so hard to exercise but have never been able to keep up with anyone. the tests I have had so far are for adrenal fatigue, and heart problems, also growth hormone, I have only had the results from the heart test which was clear, if anything comes up on the others I will post. I am hoping to get tested for metabolic disorders next have a look at this site [url]http://www.mdausa.org/publications/fa-metab-qa.html[/url] it has alot of helpful information. I wish you and your gf all the best. I can understand how hard it is both physically but also psycologicly frustrating when you always feel weak and often no-one believes you everyone just thinks I am lazy.