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Old 02-13-2010, 08:41 AM   #1
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Breathing Issues -- Update

If you check my last thread on this, you can see where I was.

Since that post, I was given supplemental oxygen through the bipap because of continuing desaturations at night.

A couple weeks ago, I noticed that the bipap machine did not seem to be changing to the inhale pressure 100% of the time. It was really flaky at first, only occurring once or twice before I fell asleep. But it did pose the question that if it was happening before I fell asleep, how often was it happening WHILE I was asleep?

Going back and forth with my DME provider and having numerous problems with them not believing me, we have finally determined that my breathing is too shallow for these machines to recognize that I'm inhaling, thus not switching to the inhale pressure.

A visit to my doctor, along with supporting information from my DME, has resulted in an order being written to switch me to a ventilator. Apparently, my diaphram muscles are weakened enough that I require more sophisticated, and possibly more invasive, help than the regular cpap and bipap machines can provide.

Are we having fun yet?

 
Old 02-13-2010, 09:34 AM   #2
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Re: Breathing Issues -- Update

Sorry Girl, know that I am thinking about you! It must be really hard, scary, and frustrating! Please know that you are an inspiration to me!

P

 
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Old 02-13-2010, 10:03 AM   #3
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Re: Breathing Issues -- Update

Thanks NP --

I appreciate that. I have to say that I'm really not very happy about this. I've gone, in 10 years time, from being barely disabled and functioning at almost a normal level, to going on a ventilator.

But, being upset and irate isn't going to change it and only make me more miserable. So, I'm choosing to look at the bright side and say that if it helps me breathe better, and get a better night's rest, it will be worth it.

 
Old 02-15-2010, 06:29 PM   #4
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Re: Breathing Issues -- Update

Kathy,
I can't imagine. This must be very scary but you seem to be keeping a good attitude about it (as good as possible). I hope the vent works without being too uncomfortable. Maybe it will be like many of the other adjustments we all make.....awkward at first then welcome. I'm getting very frustrated with my house layout and stair situation. I'm at the point where it takes 100% of all the strength I have in me to get up those 13 stairs at night and about 10 minutes. About every third night now my wife or daughter has to help lift my foot up the last 2-3 stairs.

The only reason I bring up my own issue is because I feel yours is more frightening. I feel blessed that my problem is just an inconvenience. I truly hope your new machine helps and brings you comfortable relaxing nights. Like you I try to focus on the good things I have....my family, my friends, etc and I wouldn't trade them ever even for a healthy body.

Hang in there and keep us posted.

Mark

 
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