Originally Posted by blueredblue
Steriods has always been a heated topic but fact of the matter is nobody has reportedly died yet with steroids being the sole cause. I'm not talking about abusing steroids but taking a few cycles with a safe amount. I've read about how typically a person with CMT can only achieve about 50% of the muscle that an average person can gain. It'd be nice while in my twenties to get in the best shape of my life so that I can play with my kids and actually pursue a career that interests me. I'm past puberty I've been the same height for the past 4 years and I am not overweight.
One doctor which I visited suggested that I choose a different career path after I told her it's my dream to be either a PT or MD because she thinks that I physically won't be able to handle it. I took that as a direct insult and it pisses me off more than you know. I walk fine and can lift a decent amount of weight. I know as I get older my condition will get worse and I will experience more muscle atrophy throughout my body. DMD patients can be prescribed anabolic steroids and I know that is a completely different disease but they both are techinically under the same family of Muscular Dystrophy diseases. One thing that both of them have in common is muscle atrophy, obviously DMD to a much more serious degree of atrophy. I just don't understand why I could not be monitored for a year and take a few cycles of steroids. Drinking alcohol or drug use would be much more detrimental to my health in my mind. If I took steroids I'd recieve injections as I have heard that with pills you have to take more since it's not absorbed as well through the body and there is a better chance of liver damage with the pill form.
What do you guys think?
Hi there I also have CMT.
I think that the benefits of someone using steroids are small as compared to the damage that you would be doing to the REST of your body with taking them. Just my opinion.
I also think you should take what the Dr told you as being realistic. I've been told the same.
I understand you are ticked. The truth is disease progression is different for everyone. You could be walking at the age of 35 and in in a wheelchair at the age of 36. Not to mention that for some people the fatigue of the daily grind takes more out of them than just muscle weakness. Don't take what the Dr's tell you personally. They are trying to help you. Keep in mind they see people with neuromuscular conditions everyday. They are not out there to tear your heart out.