I cannot get up by myself - will something like this help me?
I have a scooter that folds up that can fit into the boot of my car - how do you use a UpEasy seat cushion for that
Have to google it a bit
M
Will it help? It will CHANGE your life !!!!
It's a padded, spring loaded cushion, somewhat like a clam shell. Actually it's NOT spring loaded but it has a damper piston in it exactly like the ones on the hatchback of a car or minivan that push the back door up. The user adjusts the force 80-220 pounds. You set it for a little less than you weigh. In my case I weigh 190 so I set mine for about 160.
The portable UpEasy cushion retails for $80-$100 USD but I found mine at an online auction site for I think around $35-$40 USD (in the box, bought by someone's family but never used).
I LOVE, LOVE, LOVE IT !!!!!
There's also a plug-in electric version that runs a bit more.
You can easily find it by doing a search for "UpEasy cushion"
I can't believe it. This has ALL happened to me!!! Dreaman, do you have an UpEasy Seat cushion? I have 2. One I use in the house for the dinner table, computer chair, whatever; and the second that I leave in my scooter seat. Mine are the portable non-electric models that can be adjusted 80-220 pounds. they've been a huge help! I bid online for both of mine and paid about 30 bucks each. Just a thought.
Mark
Mark
No I don,t have one of those but have seeh them but not sure it would work.I can't stand by myself until Im up enough for my knees to lock if my knees are not locked in Im on the floor.My lift chair at home stands me up and then with my arms I can get up.But at this point I'll give anything a try.Maybe it would at least get me up enough for someone to help the rest of the way. Thanks Dreaman
First....I also must lock my knees before I can stand. I have a lift recliner at home. Once it's all the way up, I lock my knees and push myself up by putting my palms flat on the coffee table in front of me. Using my UpEasy cushion in my computer chair it's the same method but I place my hands on the back of my sofa which is nearby. The cushion simply lifts about 80%-90% of your weight. I could not go out or manage at home during the day without it.
Private Insurance......Years ago while I was still working and suspected that I had MD, my company, like many, offered Met Life private disability insurance. The only difference between me and 99% of the other employees was that I elected to pay the premium myself, after taxes. This came to about $12 every 2 weeks or $24/month. Best decision I ever made. Once I went on disability I was required to go on Social Security. (Hated to but I had to). The Met Life policy makes up the difference between the Soc Sec and my old pay. And because I paid the premiums after taxes, the benefit is tax free forever!
I was a civil engineer and my current monthly income is what it was while I was working. Of course once in a while social security gives a cost of living increase so my pay has increased a little.
Once a year my neurologist must sign a form stating that I am still permanently disabled. Both Met life and Soc Sec require this.
Thanks Mark
I am also covered by soc sec dis but only recently-6 mos ago.I do have a private ins and covered by medicare so am covered pretty good except for meds( in the process of getting a suppliment for that). Luckly I'm not on anything that is expensive. Except for the requip I take for restless leg sydrome so if anyone has any solutions for this I would appreciate it.
Later Dreaman
Just got back from vacation with my husband and 16 year old daughter..drove combo rode 27 hours in a ford focus, Got there around bedtime discovered the camper steps were built by an amateur so the top step was double the other steps...railing was great but in and out camper a few times hello. then the camper toilet was more like a potty chair for toddlers ultra low...then after a couple of days of this funtastic time..went to my dads house three large steps NO RAiling, I fell coming down would have cracked my head open on concrete if not for a pair of rubber work boots covered in mud..my dad has a huge work truck pick up found I could not get up in it, my father and husband laughed uncontrollably, I am vefry overweight--my husband lifted me up practically crushing my spine...needless to say really thinking about getting a divorce..11 years of marriage...I do not want my husband to do everything for me..just understand when I cannot do it myself...I do not want to end up alone and miserable...but I am hard enough on myself without having people (my husband) call me pitiful, lazy. Marriage is real hard right now no one hates this disease more than me...just soo tired of trying to please other people when I have no idea how long I will even walk...my legs are so weak and tired...my husband is not handicapped other than his stupidity and insensitivity...so he has no clue..I want to be alone in my own space, not laughed at and ridiculed...I am not a victim I give it right back, but to me this physical disease is horrible enough without a church going husband using it as a way to hurt me....just saying,,,,....any lawyers out there think I have grounds for divorce...
The following 2 users give hugs of support to: tmb0163 Dreaman (08-23-2011), michigani (08-22-2011)
That's sounds like quite an experience and not much of it very fun. I am sorry about all the difficulties you encountered. I can appreciate all of the physical obstacles you mentioned. Been there done that!
If your husband is truly insensitive, that is very sad. I could go on for pages but let me just say that I've learned since getting MD that the people who are most insensitive and impatient with MD patients are the ones who would cry the loudest if it happened to them.
I understand fully how you want to remain independent and dread the day you must rely completely on others. I'm getting there rapidly with my wife and daughters. Fortunately they are not insensitive. Certainly, they have moments when they are tired or cranky or not in the mood to help but usually they take it in stride and help me without a hard time. Occasionally they poke fun but it's usually innocent and not hurtful. On these occasions I'm usually laughing too.
I wish you didn't have to face a divorce on top of the MD. It IS very hard on a marriage. My biggest issue is that we can no longer easily enjoy going on a date or a romantic trip or even intimacy. The MD has put a major kibosh on that! It's all very, very hard !!!
Anyway, I hear you 100%. Hang in there and feel free to vent anytime.
Mandy good for you. Think positive and take things as they come. As you know we all put up our guard way in advance and then find out it wasn't as bad as we expected. There are good men out there.Nothing ventured nothing gained.
Thank you, for listening...I stayed a little hurt and angry, but venting my feelings on this board has really helped. My husband and I discussed it or basically I told him i would rather be alone than be with someone who makes it even harder. My particular diagnosis is Cento nuclear myopathy and I am 42 so I am in the beginning stages, and it is slow progressing. It just does not feel slow progressing when you go from your home that is totally in your comfort zone to literally an obstacle course,,,I do love my husband and we both are trying to adjust...its gonna take a lot of prayer..and patience..Stay positive attitude is everything so they say...
!!!
