Is anybody's LGMD spreading outward?
LGMD is basically a proximal (in proximity to the trunk) disease as opposed to distal (distant from the trunk). I've always felt that my weakest muscle groups were indeed my stomach, hips and shoulders. For years after I had great trouble climbing stairs and such things, I could still play guitar, wiggle my toes, etc. Now all of that is affected as well. My grip is deteriorating, I can't snap my fingers anymore, my toes are 90% "paralyzed", and worst of all I can no longer play guitar. I cannot hold down the chords. This sucks because I've played for years and enjoyed it despite the MD.
This is not a gripe session about my lost guitar playing. I'm just wondering if anyone else has noticed weakness of the hands and toes even with an LGMD diagnosis?