Hi, I'm new here!
My name is Selma. I'm a 22 year old female from Central Texas. I have LGMD, I am at a stage right now where I can no longer get up out of a chair without a table in front of me. I can't go up stairs or steps. I can't get up off the floor and my balance is horrible. I also walk very slow and waddle.
I need a place to vent and I feel this is it.
I've been reading this message board all day today. I've cried plenty of times. Your stories are so real to me. I'm glad I am not alone.
I feel ashamed and embarrassed of my illness. I also feel guilty for feeling that way. The only thing that makes me feel a little better is when I think about the fact that when I see someone with a disability or anything out of the ordinary, I don't think twice about it. I don't look at them any differently and that helps me think people don't look down on me because I walk funny or stick my butt in the air when I get up from a table.
What hurts me the most is not ever having children. I've wanted to be a mother since I was a child. Not biologically having a child is heartbreaking to me. But fortunately I have a wonderful boyfriend who has two little girls 9 and 7 whom he has custody of. I love them all very much and they love me too. They don't care that they have to walk slow for me or pick stuff up off the floor for me.
I'm looking forward to getting to know ya'll and sharing sad, happy, hopeful and funny stories.
I did want to ask ya'll a question. I recently noticed when I go out and about my legs and feet will burn very very badly, even if it's only from the car to the store door. Do any of you have this problem? I don't know if it's psychological because my feet don't hurt at home walking around. They hurt when i'm out and i'm thinking over and over and over don't fall, don't fall, please God don't let me fall.