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Old 07-29-2012, 07:51 AM   #1
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pain management in dm 2- myotonic dystrophy

hi all! I have recently had a muscle biopsy that was suspicious for dm2. my most disabiling issue, by far is muscle pain and joint stiffness. i have pain every day. most days moderate to severe. it limits my.mobility because it is mostly from my knees down to and including my feet. does anyone else experience such pain and if so, how do u relieve it? thanks so much in advance

 
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Old 07-30-2012, 01:47 AM   #2
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Re: pain management in dm 2- myotonic dystrophy

Hi and Welcome!!! I am sorry that you are in so much pain right now. I can totally understand when you are hurting and in pain you are already not very happy or you get frustrated because of the limits that the pain set for you. But with you not knowing whats wrong and the doctor not treating you properly I know you are just FED UP! I know this is not what you want to hear but what you described in your post is the symptoms to only like hundreds of different illness and health issues. I guess what I am trying to say is if you have any other symptoms (mild or severe) for example....Are you swelling in the areas with the pain? Is this continuous pain that you are experiencing (never goes away or feel better)? Do you have any fevers? Any dizziness, headaches,are you really fatigued? Does it get worst with certain activities (laying down, sitting up, standing for a certain amt of time). If so what? What test have the doctor done? Did he refer you to see a specialist? What did he say as far as pain control? Have you ask what is the treatment for it? I am sorry if I sound crazy for asking all those questions but It would help to know so that you do hurry and get some relief. Don't want you to be suffering too much longer. So to answer you question I think you should ask the doctor because he knows what meds or treatment you would benefit from. If I was you I would call the doctor and tell him that you are in severe pain and it is limiting your life. What can he suggest. Keep me posted on how the talk go with your doctor. I am praying that you get some plans in action soon. Take care!
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Old 09-06-2012, 10:39 PM   #3
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Re: pain management in dm 2- myotonic dystrophy

Quote:
Originally Posted by luvinmusiq View Post
Hi and Welcome!!! I am sorry that you are in so much pain right now. I can totally understand when you are hurting and in pain you are already not very happy or you get frustrated because of the limits that the pain set for you. But with you not knowing whats wrong and the doctor not treating you properly I know you are just FED UP! I know this is not what you want to hear but what you described in your post is the symptoms to only like hundreds of different illness and health issues. I guess what I am trying to say is if you have any other symptoms (mild or severe) for example....Are you swelling in the areas with the pain? Is this continuous pain that you are experiencing (never goes away or feel better)? Do you have any fevers? Any dizziness, headaches,are you really fatigued? Does it get worst with certain activities (laying down, sitting up, standing for a certain amt of time). If so what? What test have the doctor done? Did he refer you to see a specialist? What did he say as far as pain control? Have you ask what is the treatment for it? I am sorry if I sound crazy for asking all those questions but It would help to know so that you do hurry and get some relief. Don't want you to be suffering too much longer. So to answer you question I think you should ask the doctor because he knows what meds or treatment you would benefit from. If I was you I would call the doctor and tell him that you are in severe pain and it is limiting your life. What can he suggest. Keep me posted on how the talk go with your doctor. I am praying that you get some plans in action soon. Take care!

 
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