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laing distal myopathy


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Old 10-18-2012, 03:40 AM   #1
B3NEY
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laing distal myopathy

Hello, I have Laing distal myopathy. Does anyone else?

 
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Old 09-05-2014, 02:23 PM   #2
janex89
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Re: laing distal myopathy

Hi,
I see your post is a couple years old. I am not sure if you still check in on here, but I also have Laing dystrophy. Besides my father, I do not know anyone else who has this kind. My biggest issues are fatigue and endurance right now. I hope to hear back from you and I hope this message finds you doing well.

 
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Old 12-08-2015, 09:49 AM   #3
ManouMusik
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Re: laing distal myopathy

hey everybody, i dont know, if youre still reading this thread. Im from germany, 34 years old and have a kongenital distal myopathy
(my father too).

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Originally Posted by B3NEY View Post
Hello, I have Laing distal myopathy. Does anyone else?

 
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Old 12-09-2015, 05:16 PM   #4
janex89
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Re: laing distal myopathy

Hi! Yes, I have Laing's too. It is nice to make a connection with someone that has the same diagnosis. How are you? Hope you are well.

 
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Old 12-11-2015, 03:55 AM   #5
ManouMusik
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Re: laing distal myopathy

aahhh i cant believe to meet someone

Last edited by moderator2; 12-11-2015 at 05:47 AM.

 
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Old 12-11-2015, 06:56 AM   #6
ManouMusik
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Re: laing distal myopathy

im really sick and its getting worse. I need a lot of pills because of pain lasting und most time i need a wheelchair

 
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