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Muscular Dystrophy Message Board
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Old 02-28-2013, 09:55 PM   #1
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Join Date: Nov 2007
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sarahJ74 HB User
just checkin in - LGMD update

I haven't logged in for a very long time.
It is always nice to read and re-read the posts and know that there are other people who feel the same way I do about funny things like steps and curbs and getting up off the chair etc..

I am finding it harder and harder to get motivated to walk each day. Which I knew will benefit me overall, but I'm afraid I will fall and won't have anything to help me up. I take my cell phone with me but then I think of the embarrassment I'll have sitting in the sidewalk calling and waiting for someone to come help me.

I think I'm about ready to start carrying a cane.

I have been falling down much more. It seems lately it's at least once a week. I don't even know why sometimes. I just catch a toe and down I go. But it makes me more and more scared to go anywhere by myself!

Last edited by Administrator; 02-20-2014 at 12:28 AM.

 
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Old 02-28-2013, 10:48 PM   #2
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Join Date: May 2010
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mandy37 HB Usermandy37 HB Usermandy37 HB Usermandy37 HB Usermandy37 HB Usermandy37 HB User
Re: just checkin in - LGMD update

Hi there

I know to stay motivated to walk is something all of us go through. The falling bit and asking someone to help is a terrible experience (been there done that a few times)

Unlike you (I also have FHSMD) I'm far more progressed and now days I use an electronic wheelchair. I can still walk but the fear of falling is overwhelming so I just don't

The only time I do walk or get up a bit is when I take one of my boys to a venue or when I take a shower. So long someone is here I will rise from below but otherwise not

If I can give you some encouragement is please if you can still walk without pain please do so because all of a sudden your body goes to the next level and that gets taken away

I'm sorry if I sound soooo down but I'm not. I have my wheels and now I can do much much more than before. Even washing floors is easy now

 
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