Re: Anyone else suffering from Dermatomyositis??
I too suffer from DM. I also suffer from SLE (Lucky me, I know).
I was diagnosied in July of 2004. I'd been suffering "mildly" for over a year before this, and starting in March things started getting worse, and finally in the end of July a doctor took one look at me and knew something was wrong. (I assumed everything was due to overworking, undersleeping etc--though couldn't get why I had a red face and rash on my arms and hands).
Its been a rough year, I'm still not better, its seems everytime it looks like im in remission, i flare up again. The really annoying part is that my blood work always come back "normal" thanks to the meds im on.
Ive been getting IVIG since May of 2005 and am disapointed that it hasn't helped as much as i thought (or was told) it would.
At the moment, Im flaring up once again. I'm at a loss as to what i should do, accept wait...wait...and wait some more.