My mom is 55 yrs old. She was diagnosed with polymyositis 3 yrs ago.
She was on Methotrexate for 2 1/2 yrs. The whole time she took this medication it was no help her enzyme levels have reached as high as 1850!
She is now taking Prednazone this seemed to work at first however her levels are back up again. She can barely get up steps- I am starting to worry - I feel that the doctors just don't know how to treat this disease. She has been through physical therapy that has not helped. She just had an EMG (the needle procedure to see if there is nerve damage -not sure if it called that!) Anyway there is no nerve damage-but inflamation throughout her whole body-what now? They say her body is attacking her own muscles. Has anyone else been through this? Is there light at the end of this tunnel? Do you ever get well?