polymyositis - Myositis Message Board

toribird97 · 08-15-2006, 09:44 AM

does anyone know if there is a research center that specializes in polymyositis??

JoJoJim · 08-15-2006, 11:51 PM

Dear Tori,

I personally do not know of any type of research center devoted JUST to Polymyositis. I am aware of the Myositis Organization---they can point you in the right direction. The MDA is also pretty knowledgeable in Polymyositis. For me, it was a relief to FINALLY have just one doctor KNOW what I was dealing with.

Peace Always,
the DragonLady

toribird97 · 08-16-2006, 02:53 PM

THANK YOU FOR THE INFO I HAVE TO SAY THIS IS SO FRUSTRATING TO DEAL WITH-- ITS ACTUALLY MY MOM WHO HAS THIS CONDITION.
I HAVE BEEN LOOKING INTO POLYMYOSITIS ON THE COMPUTER & I READ THAT SOMEONE STARTED TAKING ZITHROMAX (ANTIBIOTIC) ALONG WITH METHOTREXATE- BUT STARTED FEELING SO MUCH BETTER WITH THE ZITHROMAX- HE IS ON VERY LOW DOSE OF METHOTREXATE HAS ANYONE ELSE HEARD OF THIS???