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Old 08-15-2006, 08:44 AM   #1
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toribird97 HB User
polymyositis

does anyone know if there is a research center that specializes in polymyositis??

 
Old 08-15-2006, 10:51 PM   #2
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Re: polymyositis

Dear Tori,

I personally do not know of any type of research center devoted JUST to Polymyositis. I am aware of the Myositis Organization---they can point you in the right direction. The MDA is also pretty knowledgeable in Polymyositis. For me, it was a relief to FINALLY have just one doctor KNOW what I was dealing with.

Peace Always,
the DragonLady
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Old 08-16-2006, 01:53 PM   #3
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toribird97 HB User
Question Re: polymyositis

THANK YOU FOR THE INFO I HAVE TO SAY THIS IS SO FRUSTRATING TO DEAL WITH-- ITS ACTUALLY MY MOM WHO HAS THIS CONDITION.
I HAVE BEEN LOOKING INTO POLYMYOSITIS ON THE COMPUTER & I READ THAT SOMEONE STARTED TAKING ZITHROMAX (ANTIBIOTIC) ALONG WITH METHOTREXATE- BUT STARTED FEELING SO MUCH BETTER WITH THE ZITHROMAX- HE IS ON VERY LOW DOSE OF METHOTREXATE HAS ANYONE ELSE HEARD OF THIS???

 
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