Re: need help please
Sorry to hear your appointment did not go so well today. There are many different blood tests they run for DM and I could not tell you them all, but what I do know is the ones that my doctor watches.
CK - is muscle enzyme test that indicates if your muscles are "inflamed" or damaged. From what I understand if your levels are over normal (around 170-200), then there is a chance you have DM if you have the typical rash that goes along with it or PM
AST/SGOT - These are liver function tests but can also indicate muscle deterioration if elevated.
Rhematoid factor - This is an indicator of an inflammatory arthritis. It does not have to be elevated to have DM/PM
ANA - If positive, this could be possible lupus but is not necessarily positive with DM/PM. Mine was negative.
There are many more tests, rather obscure ones, but these are more common ones that many have heard of. If you are unsatisfied with your results, I would definitely seek a second opinion. Maybe if you call another rheumatologist, you could ask if he has any DM/PM patients, maybe then they would be more familar with the disease. My rheumatolgist has been in practice here for over 20 years and only has 25-30 patients with DM and not all of those are currently active patients, so it is definitely quite rare. Be persistent and you will get answers. Hopefully you don't have DM/PM and have something much "easier" to treat!