Update - Dermatomyositis Questions
A huge thank you to everyone who took the time to reply to my post back in May of 2005. After I posted that, I lost track of this website and didn't get back to it until just recently. I realize as I read it again just how discouraged I was, and the replies were so caring and concerned.
Well, I finally did get a definite diagnosis of DM. I went to a Muscular Dystrophy clinic and the neurologist there told me that 1 out of 3 people with DM will have normal bloodwork throughout the disease. I did have a muscle biopsy which also clinched the diagnosis. I am fortunate - I think my case is fairly mild although I still have a lot of upper leg pain and about a year ago developed foot drop where my toe will suddenly drag as I am walking. I have fallen a couple of times, but nothing terrible. My right foot is weaker than my left, and recently I developed a case of pleurisy that will not clear up. My family dr. wants me to see the neuro again. She is very concerned and so am I that something is going on with my lungs. It's been almost a month with the chest, rib pain when I cough.
Would like to hear from anyone who has lung problems from DM.