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Old 06-06-2007, 11:22 AM   #1
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oz-kate HB User
Question Orbital Myositis
I am greatful to have found this site but so sad the many out there suffering. For aprox 20 years, have had this dreadful monster "they" call OM orbital myositis. Is there anyone else with this form of myositis I really hope not but if there is please PLEASE reply. Feeling very alone.

 
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Old 06-20-2007, 07:06 PM   #2
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cookingmom HB User
Re: Orbital Myositis
oz-kate,

I do not have this but I just wanted to say that I am sorry that this seems to be a long standing problem for you. My prayers are with you. B

 
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Old 08-09-2007, 08:59 AM   #3
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Thumbs up Re: Orbital Myositis
My left eye was totally swollen I could not open it at all.
I ended up in the hospital in May for 5 days of antibiotics & then Steroids.
I have been diagnosed with an Orbital Pseudotumor, and now also Myotosis.
It is very frustrating trying to deal with something like this when there is no cause or reason.
I was doing fine until last week when the left eye started acting up again. Back to the city and Wills Eye Hospital, back on steroids & pain meds again. I would really like to know what if anything causes this troublesome condition.

 
Old 01-06-2008, 06:56 AM   #4
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Re: Orbital Myositis
Quote:
Originally Posted by oz-kate View Post
I am greatful to have found this site but so sad the many out there suffering. For aprox 20 years, have had this dreadful monster "they" call OM orbital myositis. Is there anyone else with this form of myositis I really hope not but if there is please PLEASE reply. Feeling very alone.
I just had an MRI of the brain and orbits on Friday and the radiologist wrote it could be "orbital pseudo tumor" or "orbital myositis". I have had symptoms in my right eye ( eye bulge/double vision/now headaches) going back at least 1 year. I saw an eye doctor Friday afternoon and am undergoing lab tests tomorrow for Graves Disease. Not sure yet the true diagnosis and/or treatment plan or prognosis. It is scary and depressing and I am sleeping more just to avoid the headaches. You are certainly not alone!

 
Old 03-03-2008, 04:32 AM   #5
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amina39 HB User
Re: Orbital Myositis
my name is amina, i am 39 yrs old and have suffered for 20 yrs like yourself, with orbitol myositis. I have been on long term steroids ever since. I am currently on homeopathic remedies for inflammation. I am also looking into the link maybe between this and Behcets syndrome which my brother suffers from.

 
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