prednisone - when do side effects go away - Myositis Message Board

lilly08 · 01-13-2008, 07:54 AM

prednisone - when do side effects go away

Nan07 · 01-16-2008, 02:51 PM

I would like to know that too. I seem to be lossing some hair, and my face is still a bit fat. I bruise so easy that I bumped my legs in Nov. and had to go to the Wound Clinic and was walking around likd a mummy for a month, twice a week..right through Christmas. I now have them healed, but I'm afraid of not bandaging them up, afraid of bumping them again..It takes so little for them to bruise..i do believe since I'm down to 6mgs of prednisone, my legs and hands aren't spliting open like they were before, but my poor hands are so blue. I keep them covered as much as possible..I'm alson on Methotrexate, 8mgs on Wed..that is when I don't take the folic acid, but all other days..
They really don't know what autoimmune disease I have yet I don't think. Seem to think it's polymyalgia R. but then I never have had the pain that you are suppose to have whti it...
Let's keep hoping they finally come up with an answer to all of this, so we can get off the prednisone. My Rheumy call when I had been there the last time and told me to stay on the 6mgs as my sed rate was going up.....man!!!
Take care.....Nel

allizfullofluv · 07-14-2008, 01:53 AM

Hi there,
I am sorry your going through this. I hated the side effects. I had a "moon face" from the steriods and lost almost all my usually thick hair and bruised like crasy for the slightest bump. I know it's hard. I felt like I was in hell. This was in 1999 I was Diagnosed with Dermatomyositis. I was 23...I am 31 now and all the side effects went away after the prednisone dose went under 20mg. I live a normal life with no flare ups. I got a lot of stretch marks and my metabolism is not the same. I have to really watch what I eat and I am overweight (use to be thin before) but I am just fine now.

Nan07 · 07-19-2008, 03:22 PM

Hi,
All that is over weight with me is a stomach that I've never had before, and love handles..I've gained 8 lbs since I started taking prenisone..I'm cut down to 4 and1/2 pred. now, but I can't tell any difference at all, in the way I feel and bruising, and sthin skin..I am about twice your age, maybe that has something to do with it...
If the Rheumy doesn't find out my problem I'm going to have to change Dr...this is stupid to feel ilke this for 3 years now...I'm just to active for this..
I'm on so many meds I don't know which one is doing what...
Glad you are feeling fine now...take care.....Nel

maz70 · 08-20-2008, 07:15 PM

Hi, i found the side effects went away when i was dropped down to 10mgs. I too had the moon face, bloated stomach (how uncomfortable), sweats, hyperactivity and couldn't sleep. On the upside my house was never so organized, hehe. It is amazing how quickly it all disappeared once the dosage dropped. I am on 5mgs now with 150 of Imuran as the doctor switched me over because of the side effects of the steroids. However when he has tried to drop the prendisalone completely my aches and pains come back worse, so for now i have to stay on the low dose which seems to be keeping it under control.
Strangely my father in law also has polymyositis and he had the same recovery after dropping the steroid.
I felt so depressed and did not even want to go out in public when i was on the high dose of steroid so i sympathise with you, i hope i never have to go back to that and i hope you feel better soon.
Goodluck.