My mom was diagnosed w/polymyositis i guess almost 5 yrs ago. She tried the ivg treatments, methotrexate, she was on prednisone, & several other drugs that did not seem to help. she is 56 yrs. -old she took herself off of all medication probably about 1 yr ago. i think she just got discouraged because of the weight gain and there were no positive results -- her enzyme level always seems to be about 1300, which from what i read doesn't seem to be that high for someone with this disease? she now has a hard time going up stairs , she has been falling alot, what comes next??????? anyway i was searching online & found out about this INCLUSION BODY MYOSITIS and was wondering if anyone knows about this ? also does anyone who has been diagnosed with PM have any suggestions or any kind of physical therapy ideas? i hate to see my mom hurt like this--with no way to help her--any ideas ???