Finally some Success with Dermatomyositis Skin Condition
I developed the dermatomyositis skin rash about 13 months ago. Went for all the cancer scans and they were negative. Never developed any muscle problems either (thanks goodness). Went to see a noted Dr. at the Hospital for Special Surgery in NYC after 6 months of getting nowhere fast. He started me on a course of Plaquenil, which had no effect, although he is still keeping me on it. After that, I was started on a regimen of prednisone which also had no effect. In early September, the doctor set me up for IVIG....4 days straight at 40 grams per day. After about 10 days, things started to happen. My shoulders and back are now clear, the redness in my face is down about 80%. My upper chest is almost clear and my arms are now showing signs of improvement. The only area with little progress are my hands which are still purple and scaly on all my joints. I am scheduled for another 4 days of IVIG starting October 6 and hopefully I'll see even more progress. Thank goodness for insurance because I understand the cost of each course of IVIG is in excess of $10,000.