It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Myositis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-12-2009, 08:47 PM   #1
Newbie
(female)
 
Join Date: Feb 2009
Location: Color.Springs,CO USA
Posts: 1
Sage Owl HB User
Cool Childhood DM & Auto immune issues

My 32 yr. old daughter was diagnosed with DM in 1985 at age 9. She was pronounced Cured 2 years later after prednisone treatment. We have since learned DM is auto immune. Now, at age thirty she has developed 4 auto immune diseases - hepatitis,celiac sprue (hereditary) hoshimoto's thrydroiditis & Auto immune vasculitis. She is on prednisone again, and immuran for the hep. The Rhuematologist insists the dermotomyositis has not returned. The red nail beds, the bluish tint on the eye lids, excessive hair growth , and joint and muscle pain are back. Anyone else had any experience similar? How does one find a rheumatologist that will take it serious? She has seen 2 rheumy so far. What testing should she be demanding?

 
Old 03-20-2009, 08:13 AM   #2
Newbie
(female)
 
Join Date: Mar 2009
Posts: 5
meg82x HB User
Re: Childhood DM & Auto immune issues

hi i have had polymyositis for 15yrs + and currently in remmission but still get pains and nothing shows in my bloods. I was sure it had flared up and still think likely. I have recently had an mri done which was also normal. You could request and mri. I have also seen a few rheumies and sometimes feel they dont really understand. Good luck x

 
Sponsors Lightbulb
   
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Childhood Hyperactive, Adult Hypoactive scoot Thyroid Disorders 1 07-02-2008 04:49 PM
Received my new results & unexpected news Audrey-B Anemia 26 03-16-2008 03:40 AM
What are some examples of auto immune disorders? tlhalabama Immune Disorders 2 03-24-2007 07:03 AM
2nd auto-immune disorder in 2 years? natchimabeauty Immune Disorders 0 01-06-2007 05:39 PM
Hashis & other autoimmune disorders Danialla Thyroid Disorders 1 03-01-2006 08:27 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



CROSTHWAITE (2), dutchess99 (1), allizfullofluv (1), danni j (1), anjoe5859 (1), pattianne24 (1), waddles (1), ladybud (1), mctdonna (1), duncan1 (1)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 05:30 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!