Hi i was diagnosed with dermatomyositis in 2009. I have been in remission for over a year and off medication since 2010.
Since then i have experienced a fractured spine which led to the diagnosis of osteoporosis due to the steroid treatment. For which i am being treated with daily injections of forsteo.
Although i am thankful to be in remission, i still get pains in my joints and muscles that can make me very tired and make me dread walking long distances. It seems to be so much worse recently, possible due to the cold weather. My CK levels are normal. I have recently been in hospital with neutropenia but no reason was given for it cause. Doctors can not seem to answer why i am still in pain because my blood work is normal. I try to exercise and it causes more pain. Does anybody know why after remission pain can still occur, or ways that can help reduce it? Thanks!