It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Myositis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 06-24-2009, 10:48 AM   #1
mim mim is offline
Senior Veteran
(female)
 
mim's Avatar
 
Join Date: Nov 2005
Location: South Carolina
Posts: 741
mim HB Usermim HB Usermim HB Usermim HB Usermim HB Usermim HB Usermim HB User
Question Need some input!

Hi all, I am usually on the fibro and arthritis board, but was recently tested with CK of 301 and I don't exercise at all...lol. I have been dealing with terrible bone pain and muscle weakness since an accident in 2005. I have multiple dx including the full body arthritis, fibro, myofascial, spinal damage in the L section and C section including surgeries, I have no thyroid now since 1996 and on meds for that, slight brain damage from a fall to name the worst. In the past 8 months my throat is scratchy and my vocal chords will tighten up terribly. I wake up choking at times and have even woken up almost twisted in a pretzel knot to the right. Just bizarre and painful. My neuro thinks the spasms are due to chord damage since my emg and nerve conduction tests 6 months ago were relatively normal. However my throat symptoms, jaw tightness and continuous tightness with ankles and feet is not improving in spite of tripling xanaflex dosage. I have had suggestions from other folks online to check into the polymyopathy and laryngeal distonia with my next visit. My regular gp is the one that contacted me over the elevated ck and wants to retest in July. Does any of this seem familiar to those of you that have an actual diagnosis? Thanks in advance to any comments or suggestions you have to offer! It is so frustrating to try to find relief and not even know what is causing the problems.
Mim Gregg

 
Sponsors Lightbulb
   
Old 06-24-2009, 11:01 AM   #2
Senior Member
(female)
 
Join Date: Jun 2009
Location: CA
Posts: 100
Nelee HB User
Re: Need some input!

Hi Mimgreg,
I am going to keep this post very short. I am new and don't know my way around yet.
I'll learn.
I have the health problems you have - but not the throat problems.
My spinal problems involve all levels of the spine.
Can we talk about our medications here?
If I can find my way back, we may be able to help each other a little bit.
Nelee

 
Old 06-25-2009, 06:13 AM   #3
mim mim is offline
Senior Veteran
(female)
 
mim's Avatar
 
Join Date: Nov 2005
Location: South Carolina
Posts: 741
mim HB Usermim HB Usermim HB Usermim HB Usermim HB Usermim HB Usermim HB User
Re: Need some input!

Hi Nelee, yes we can talk about medications on here. I have been able to suggest alternate medications to try to my doctors thanks in large to others experiences. Hope to hear from you soon,
Mim Gregg

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Brain atrophy suffer. Help I need some input and guidance waynel Brain & Nervous System Disorders 18 08-03-2010 12:21 PM
Mom has cancer, and need input momoft1dbtc Cancer: Colon 1 05-17-2009 10:35 PM
I have been prescibed Gabapentin for hot flashes, need some input on this drug :) Lynda1960 Menopause 2 11-04-2008 06:58 AM
need some input please patti23 Spinal Cord Disorders 10 12-10-2007 07:30 PM
nodule results need some input zindy Thyroid Disorders 6 06-06-2007 09:09 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:13 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!