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Old 08-02-2009, 05:22 PM   #1
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Join Date: Jul 2009
Location: colorado
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RSF1956 HB User
heat intolerance

Does anyone find that being in the sun/heat makes their symptomds worse? My daughter went to a pool party with us today and after sitting in the sun for awhile she almost fell getting up and her legs were very wobbly and she felt weak. She recovered ok afte going inside and sitting by the a.c. for awhile. Anyone else notice this?

 
Old 11-21-2009, 03:39 PM   #2
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Location: Palm Springs Ca USA
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desertkwr HB User
Re: heat intolerance

I am new to the Web site but not to P.M.. I was DX 12 years ago and I currently live in Palm Springs California where we have on the average 120 days per year over 100 degrees. I find I have pain in early hot season but my body naturally seems to adjust. I have been advised to not have hot baths and to stay out of hot tubs, so heat must be a studied factor.
How did your daughter adjust during the season?
Ken

 
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Old 11-27-2009, 02:13 AM   #3
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Join Date: Nov 2009
Location: Winnipeg, Canada
Posts: 28
Keith2468 HB User
Re: heat intolerance

Even healthy teenagers are very susceptible to heat stroke. Much more so than adults.

Sunlight is now known to aggravate dermatomyositis, especially in women.

Also, some of the drugs taken for PM and DM cause the body to be sensitive to ultraviolet light.

So you should wear a combination of sun block and clothing to protect yourself.

As for heat, I've done a lot of reading and not read anything particular about heat and PM or DM. But I suspect that the kind of heat you have in Palm Springs, especially when the seasons are changing to be warmer, probably have general affects on a lot of muscle illnesses. The blood changes (thickens and thins) as the seasons change.

I mean, when it is warm, it is harder to do physical exercise or manual labor. So high heat must make it harder for muscles to function.

Hot baths and hot showers are bad for diseases like psoriasis.

Last edited by Keith2468; 11-27-2009 at 02:16 AM.

 
Old 03-11-2010, 11:20 PM   #4
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jaysbee HB User
Re: heat intolerance

Quote:
Originally Posted by RSF1956 View Post
Does anyone find that being in the sun/heat makes their symptomds worse? My daughter went to a pool party with us today and after sitting in the sun for awhile she almost fell getting up and her legs were very wobbly and she felt weak. She recovered ok afte going inside and sitting by the a.c. for awhile. Anyone else notice this?
Hi there i have polymyositis and am highly sensitive to heat. That is both sun and water temperature. I get overheated so quickly and it looks like that is what has happened to your daughter. I am on methotrexate which also increase the symptoms.

 
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